Register of Charities - The Charity Commission INTERNATIONAL NIEMANN-PICK DISEASE REGISTRY

Charity number: 1175311
Charity reporting is up to date (on time)

Activities - how the charity spends its money

The INPDR aims to increase understanding of Niemann-Pick Disease through the collection of patient data on a global scale. It will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts, facilitating recruitment of clinical studies and supporting development/access to new and emerging therapies.

Income and expenditure

Data for financial year ending 31 March 2023

Total income: £173,361
Total expenditure: £415,907

Fundraising

No information available

Trading

One or more trustees are also directors of the subsidiaries

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.