Register of Charities - The Charity Commission INTERNATIONAL NIEMANN-PICK DISEASE REGISTRY
Charity Number: 1175311
Charity reporting is up to date (on time)
Activities - how the charity spends its money
The INPDR aims to increase understanding of Niemann-Pick Disease through the collection of patient data on a global scale. It will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts, facilitating recruitment of clinical studies and supporting development/access to new and emerging therapies.
Income and expenditure
Data for financial year ending 31 March 2024
Total income: £131,498
Total expenditure: £307,686
People
4 Trustee(s)
6 Volunteer(s)
Employees with total benefits over £60,000
| Number of employees | |
|---|---|
| £60k to £70k | 1 |
Fundraising
No information available
Trading
One or more trustees are also directors of the subsidiaries
Trustee payments
No trustees receive any remuneration, payments or benefits from the charity.