MIND BODY EDS

Charity number: 1177182
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Our Charity provides grants to individuals with, or suspected of having, the condition of Ehlers Danlos syndromes to allow for timely treatment and diagnosis of the disease and its symptoms; we also aim to raise awareness among the public and within the medical profession. We operate across the UK.

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £23,109
Total expenditure: £16,738

People

5 Trustee(s)

3 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

Main way of carrying out purposes is grant making
What the charity does:
  • General Charitable Purposes
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • Other Charities Or Voluntary Bodies
  • The General Public/mankind
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Other Finance
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 15 February 2018: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

5 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Jessica Kohn Trustee 16 October 2024
None on record
Dr Rochelle Dodds Sylvester Trustee 27 August 2024
None on record
Martin Raymond Coleman Trustee 27 August 2024
None on record
Francesca Lock Trustee 26 November 2019
None on record
KEVIN JOHN SYLVESTER Trustee 15 February 2018
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2019 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £45.42k £10.39k £41.60k £31.13k £23.11k
Total expenditure £58.91k £6.99k £18.95k £31.07k £16.74k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 24 June 2024 On Time
Accounts and TAR 31 December 2023 24 June 2024 On Time Download Open in new window
Annual return 31 December 2022 29 October 2023 On Time
Accounts and TAR 31 December 2022 29 October 2023 On Time Download Open in new window
Annual return 31 December 2021 01 September 2022 On Time
Accounts and TAR 31 December 2021 01 September 2022 On Time Download Open in new window
Annual return 31 December 2020 14 October 2021 On Time
Accounts and TAR 31 December 2020 14 October 2021 On Time Download Open in new window
Annual return 31 December 2019 25 July 2020 On Time
Accounts and TAR 31 December 2019 25 July 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 15 Feb 2018

Charitable objects

1) THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROMOTION OF GOOD HEALTH AMONG PEOPLE SUFFERING FROM EHLERS DANLOS SYNDROMES, COMORBIDITIES AND RELATED CONDITIONS IN PARTICULAR BUT NOT EXCLUSIVELY BY: A) PROVIDING INFORMATION AND GRANTS OF FINANCIAL ASSISTANCE TO THOSE DIAGNOSED WITH SUCH CONDITIONS, AND THOSE SEEKING A DIAGNOSIS. B) PROVIDING GRANTS OF FINANCIAL ASSISTANCE TO ORGANISATIONS UNDERTAKING RESEARCH INTO EHLERS DANLOS SYNDROMES, COMORBIDITIES AND RELATED CONDITIONS, THE USEFUL RESULTS OF WHICH WILL BE DISSEMINATED FOR THE PUBLIC BENEFIT. 2) TO ADVANCE THE EDUCATION OF THE PUBLIC IN EHLERS DANLOS SYNDROMES, COMORBIDITIES AND RELATED CONDITIONS IN PARTICULAR BUT NOT EXCLUSIVELY BY PROVIDING INFORMATIVE TALKS DESIGNED TO RAISE AWARENESS AND FURTHER KNOWLEDGE OF THE CONDITIONS AMONG THE MEDICAL PROFESSION. FOR THE PURPOSES OF THIS CLAUSE: EHLERS-DANLOS SYNDROMES (EDS) ARE A GROUP OF RARE INHERITED CONDITIONS THAT AFFECT CONNECTIVE TISSUE. CONNECTIVE TISSUES PROVIDE SUPPORT IN SKIN, TENDONS, LIGAMENTS, BLOOD VESSELS, INTERNAL ORGANS AND BONES. THERE ARE THIRTEEN DIFFERENT TYPES OF EDS THAT MAY SHARE SOME SYMPTOMS, INCLUDING: AN INCREASED RANGE OF JOINT MOVEMENT, STRETCHY SKIN, FRAGILE SKIN THAT BREAKS OR BRUISES EASILY. THE DIFFERENT TYPES OF EDS ARE CAUSED BY FAULTS IN CERTAIN GENES THAT MAKE CONNECTIVE TISSUE WEAKER. DEPENDING ON THE TYPE OF EDS, THE FAULTY GENE MAY HAVE BEEN INHERITED FROM ONE PARENT, OR BOTH PARENTS. SOMETIMES THE FAULTY GENE ISN'T INHERITED, BUT OCCURS IN THE PERSON FOR THE FIRST TIME. EDS CAN AFFECT PEOPLE IN DIFFERENT WAYS. FOR SOME, THE CONDITION IS RELATIVELY MILD, WHILE FOR OTHERS THEIR SYMPTOMS CAN BE DISABLING AND LIFE-THREATENING. COMORBIDITIES AND RELATED CONDITIONS INCLUDE: AUTONOMIC NERVOUS SYSTEM DISORDERS; CARDIOVASCULAR DYSAUTONOMIA; FUNCTIONAL GASTROINTESTINAL DISORDERS; IMMUNE SYSTEM DYSREGULATION; EXOCRINE GLAND DYSFUNCTION; MAST CELL ACTIVATION DISORDER; MUSCULOSKELETAL SYSTEM DISORDERS; SKIN AND MUCOSA DISORDERS; NERVOUS SYSTEM DISORDERS; GYNAECOLOGICAL DISORDERS; CHRONIC FATIGUE SYNDROME; CHRONIC PAIN SYNDROME AND PSYCHIATRIC DISORDERS.

Contact information

Address:
c/o Shaw Gibbs
Wey Court West
Union Road
FARNHAM
Surrey
GU9 7PT
Phone:
01252 711244
Email:
info@mindbodyeds.org.uk
Website:

mindbodyeds.org.uk