THE MADDI FOUNDATION

Charity number: 1174374
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

We fund research to help develop treatments and hope ultimately to find a cure for Spastic Paraplegia Type 15 or SPG15. We aim to raise awareness of SPG15 disease by connecting clinicians, researchers and patients together and at Public Events.

Income and expenditure

Data for financial year ending 31 August 2024

Total income: £12,728
Total expenditure: £2,590

People

4 Trustee(s)

2 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • The General Public/mankind
How the charity helps:
  • Makes Grants To Organisations
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 24 August 2017: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints policy and procedures
  • Engaging external speakers at charity events policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Safeguarding policy and procedures
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

4 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
CARINA THURGOOD Chair 24 August 2017
None on record
HARRY THURGOOD Trustee 24 August 2017
None on record
VICTORIA LEE BISSETT Trustee 24 August 2017
None on record
ALEXANDRA THURGOOD Trustee 24 August 2017
None on record

Financial history

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Financial period end date

Income / Expenditure 31/08/2020 31/08/2021 31/08/2022 31/08/2023 31/08/2024
Total gross income £29.20k £20.96k £10.88k £17.52k £12.73k
Total expenditure £15.87k £46.03k £1.32k £1.69k £2.59k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 August 2024 28 May 2025 On Time
Accounts and TAR 31 August 2024 28 May 2025 On Time Download Open in new window
Annual return 31 August 2023 03 July 2024 3 days late
Accounts and TAR 31 August 2023 03 July 2024 3 days late Download Open in new window
Annual return 31 August 2022 29 June 2023 On Time
Accounts and TAR 31 August 2022 29 June 2023 On Time Download Open in new window
Annual return 31 August 2021 29 June 2022 On Time
Accounts and TAR 31 August 2021 29 June 2022 On Time Download Open in new window
Annual return 31 August 2020 12 May 2021 On Time
Accounts and TAR 31 August 2020 12 May 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 24 Aug 2017

Charitable objects

FOR THE PUBLIC BENEFIT TO PROTECT AND PROMOTE THE HEALTH OF THE PUBLIC IN PARTICULAR BY RESEARCH INTO THE NATURE, CAUSES, DIAGNOSIS, PREVENTION, TREATMENT AND CURE OF HEREDITARY SPASTIC PARAPLEGIA TYPE 15 (SPG15) AND ASSOCIATED HEREDITARY SPASTIC PARAPLEGIAS, INCLUDING THE DEVELOPMENT OF RESEARCH INTO PRACTICAL APPLICATIONS FOR THE PREVENTION, TREATMENT AND CURE OF HEREDITARY SPASTIC PARAPLEGIA TYPE 15 (SPG15) AND ASSOCIATES HEREDITARY SPASTIC PARAPLEGIASAND TO PROVIDE INFORMATION AND RAISE PUBLIC UNDERSTANDING OF SUCH MATTERS.

Contact information

Address:
Tish Press Ltd
5 Rayleigh Road
Hutton
BRENTWOOD
Essex
CM13 1AB
Phone:
07557105306
Email:
info@themaddifoundation.com
Website:

www.themaddifoundation.com Open in new window