FIBROUS DYSPLASIA SUPPORT SOCIETY

Charity number: 1175622
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more.

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £2,092
Total expenditure: £2,816

People

7 Trustee(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

No information available

Trustee payments

No information available

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • People With Disabilities
How the charity helps:
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout England And Wales
  • Scotland

Governance

Registration history:
  • 08 November 2017: Standard registration
Organisation type:
Charitable company
Other names:
  • FDSSUK (Working name)
Company number:
10336269 Open in new window
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Risk management
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

7 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
HEATHER WALL Chair 18 August 2016
None on record
Joyce Mendoza Trustee 01 January 2020
None on record
Stacy Richardson Trustee 01 January 2020
None on record
Sarah Amy Russell Trustee 24 April 2018
None on record
Steven George Bullock Trustee 24 April 2018
None on record
HEATHER DELANEY Trustee 18 August 2016
None on record
JAMIE WATSON Trustee 18 August 2016
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £8.91k £6.08k £8.62k £1.45k £2.09k
Total expenditure £15.33k £3.17k £1.47k £730 £2.82k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 03 January 2025 On Time
Accounts and TAR 31 March 2024 Not Required
Annual return 31 March 2023 29 December 2023 On Time
Accounts and TAR 31 March 2023 Not Required
Annual return 31 March 2022 23 December 2022 On Time
Accounts and TAR 31 March 2022 Not Required
Annual return 31 March 2021 29 December 2021 On Time
Accounts and TAR 31 March 2021 Not Required
Annual return 31 March 2020 05 February 2021 5 days late
Accounts and TAR 31 March 2020 Not Required
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES INCORPORATED 18 AUG 2016 AS AMENDED BY SPECIAL RESOLUTION REGISTERED AT COMPANIES HOUSE ON 30 OCT 2017

Charitable objects

TO RELIEVE SICKNESS AND TO PROMOTE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT OF THOSE DIAGNOSED AND SUFFERING FROM FIBROUS DYSPLASIA AND MCCUNE-ALBRIGHT SYNDROME (INCLUDING ASSOCIATED CONDITIONS) AND THEIR CARERS IN PARTICULAR BUT NOT LIMITED TO THE FOLLOWING:- A)ENCOURAGING, PROMOTING AND ASSISTING IN A BETTER UNDERSTANDING OF THE CONDITIONS AND POSSIBLE TREATMENT OF THEM; B)PROMOTE INCREASED AWARENESS AMONGST MEDICAL PROFESSIONALS AND GENERALLY;AND D)ENCOURAGE PERSONS MEET OTHER SUFFERERS AND TO SHARE THEIR EXPERIENCES.

Contact information

Address:
82 Nottingham Road
Somercotes
Alfreton
Derbyshire
DE55 4LY
Phone:
07789958722
Email:
enquire@fdssuk.org.uk
Website:

www.fdssuk.org.uk Open in new window