FIBROUS DYSPLASIA SUPPORT SOCIETY
Charity number: 1175622
Charity reporting is up to date (on time)
Charity overview
Activities - how the charity spends its money
The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more.
Income and expenditure
Data for financial year ending 31 March 2025
Total income: £14,123
Total expenditure: £1,357
People
7 Trustee(s)
Employees with total benefits over £60,000
No information availableFundraising
No information available
Trading
This charity does not have any trading subsidiaries.
Trustee payments
No trustees receive any remuneration, payments or benefits from the charity.
What, who, how, where
What the charity does:
- The Advancement Of Health Or Saving Of Lives
Who the charity helps:
- People With Disabilities
How the charity helps:
- Provides Advocacy/advice/information
Where the charity operates:
- Throughout England And Wales
- Scotland
Governance
Registration history:
- 08 November 2017: Standard registration
Organisation type:
Charitable company
Other names:
- FDSSUK (Working name)
Company number:
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
- Bullying and harassment policy and procedures
- Campaigns and political activity policy and procedures
- Complaints handling
- Complaints policy and procedures
- Engaging external speakers at charity events policy and procedures
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Investing charity funds policy and procedures
- Risk management
- Safeguarding policy and procedures
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
- Volunteer management
Land and property:
This charity does not own and/or lease land or property
Trustees
Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service
7 Trustee(s)
| Name | Role | Date of appointment | Other trusteeships | Reporting status of other trusteeships | ||||
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| Sophie Collier | Trustee | 01 December 2024 |
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| Nicola Deeley | Trustee | 29 September 2024 |
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| Joyce Mendoza | Trustee | 01 January 2020 |
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| Stacy Richardson | Trustee | 01 January 2020 |
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| Sarah Amy Russell | Trustee | 24 April 2018 |
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| HEATHER DELANEY | Trustee | 18 August 2016 |
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| JAMIE WATSON | Trustee | 18 August 2016 |
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Financial history
Financial period end date
| Income / Expenditure | 31/03/2021 | 31/03/2022 | 31/03/2023 | 31/03/2024 | 31/03/2025 | ||
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Total gross income | £6.08k | £8.62k | £1.45k | £2.09k | £14.12k | |
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Total expenditure | £3.17k | £1.47k | £730 | £2.82k | £1.36k | |
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Income from government contracts | N/A | N/A | N/A | N/A | N/A | |
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Income from government grants | N/A | N/A | N/A | N/A | N/A |
Accounts and annual returns
This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
| Title | Reporting year | Date received | Received | Download |
|---|---|---|---|---|
| Annual return | 31 March 2025 | 08 January 2026 | On time | |
| Accounts and TAR | 31 March 2025 | Not required | ||
| Annual return | 31 March 2024 | 03 January 2025 | On time | |
| Accounts and TAR | 31 March 2024 | Not required | ||
| Annual return | 31 March 2023 | 29 December 2023 | On time | |
| Accounts and TAR | 31 March 2023 | Not required | ||
| Annual return | 31 March 2022 | 23 December 2022 | On time | |
| Accounts and TAR | 31 March 2022 | Not required | ||
| Annual return | 31 March 2021 | 29 December 2021 | On time | |
| Accounts and TAR | 31 March 2021 | Not required |