THE CHARLIE GARD FOUNDATION

Charity number: 1176344
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

We support families affected by mitochondrial disease offering services to aid a better quality of life, and fund research into viable treatments for this currently incurable disease. We aim to raise awareness for mitochondrial disease within the general public through a variety of events, and support patients by connecting them to the correct support networks within the mitochondrial community.

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £17,312
Total expenditure: £106,701

People

3 Trustee(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

Main way of carrying out purposes is grant making
What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • Other Defined Groups
  • The General Public/mankind
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Ireland
  • Italy
  • Scotland
  • Spain
  • United States

Governance

Registration history:
  • 18 December 2017: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Campaigns and political activity policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Engaging external speakers at charity events policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity owns and/or leases land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

3 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
James Evers Trustee 21 December 2022
None on record
Jeffrey Mendlesohn Trustee 18 February 2019
None on record
CHARLES DA SILVA Trustee 17 December 2017
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £113.33k £77.84k £96.27k £36.77k £17.31k
Total expenditure £295.95k £389.26k £261.83k £206.01k £106.70k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 31 January 2025 On Time
Accounts and TAR 31 March 2024 31 January 2025 On Time Download Open in new window
Annual return 31 March 2023 21 December 2024 325 days late
Accounts and TAR 31 March 2023 21 December 2024 325 days late Download Open in new window
Annual return 31 March 2022 21 December 2024 690 days late
Accounts and TAR 31 March 2022 21 December 2024 690 days late Download Open in new window
Annual return 31 March 2021 28 January 2022 On Time
Accounts and TAR 31 March 2021 28 January 2022 On Time Download Open in new window
Annual return 31 March 2020 13 August 2021 194 days late
Accounts and TAR 31 March 2020 13 August 2021 194 days late Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 18 Dec 2017

Charitable objects

FOR THE PUBLIC BENEFIT, TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF MITOCHONDRIAL DISEASE AND THEIR FAMILIES AND CARERS BY ALL OR ANY OF THE FOLLOWING MEANS: (1) PROVIDING FINANCIAL SUPPORT FOR RESEARCH INTO METHODS OF DIAGNOSIS, TREATMENT AND MANAGEMENT FOR MITOCHONDRIAL DISEASE AND RELATED SERVICES, AND TO HELP PUBLISH AND DISSEMINATE THE FINDINGS OF SUCH RESEARCH; (2) RAISING AWARENESS ABOUT ALL AND ANY ISSUES RELATED TO MITOCHONDRIAL DISEASE AMONG THE PUBLIC, MEDIA, LEGISLATORS AND AMONGST HEALTHCARE PROFESSIONALS; (3) PROVIDING TECHNICAL ADVICE TO GOVERNMENT AND OTHERS ON MATTERS RELATED TO MITOCHONDRIAL DISEASE, AND COMMENTING ON PROPOSED OR EXISTING LEGISLATION IMPACTING SERIOUS MEDICAL TREATMENT CASES; AND (4) PROVIDING FAMILIES LIVING WITH MITOCHONDRIAL DISEASE WITH INFORMATION AND SUPPORT, INCLUDING FINANCIAL SUPPORT WHERE POSSIBLE. FOR THE PURPOSES OF THIS CLAUSE "MITOCHONDRIAL DISEASE" MEANS ANY OF THE GROUP OF CHRONIC, GENETIC DISORDERS CAUSED BY DYSFUNCTIONAL MITOCHONDRIA AND "SERIOUS MEDICAL TREATMENT CASE" HAS THE SAME MEANING AS GIVEN IN PRACTICE DIRECTION E, SUPPLEMENTING PART 9 OF THE COURT OF PROTECTION RULES, 2007. NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005 AND SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008.

Contact information

Address:
Suite 482
8 Church Street
INVERNESS
IV1 1EA
Phone:
01642 917342
Email:
info@thecharliegardfoundation.org
Website:

www.thecharliegardfoundation.org Open in new window