THE SUSSEX ASSOCIATION FOR SPINA BIFIDA AND HYDROCEPHALUS

Charity number: 1175032
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Recently incorporated previous Reg'd Charity No. 247430 Working with those in Sussex who have spina bifida and/or hydrocephalus to create and develop their best opportunities. Activities include and Adviser service, one stop clinic, family support work, buddy scheme, residential breaks, education advice, youth clubs, newlsetter, website, training and work experience opportunities.

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £230,663
Total expenditure: £252,092

Total income includes £10,755 from 5 government grant(s)

People

5 Trustee(s)

70 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • Disability
Who the charity helps:
  • People With Disabilities
How the charity helps:
  • Provides Buildings/facilities/open Space
  • Provides Services
  • Provides Advocacy/advice/information
Where the charity operates:
  • East Sussex
  • West Sussex

Governance

Registration history:
  • 09 October 2017: Standard registration
Organisation type:
Charitable company
Other names:
  • SASBAH (Working name)
Company number:
10994693 Open in new window
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity owns and/or leases land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

5 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Ann Filtness Trustee 11 February 2025
None on record
TIMOTHY MCDERMOTT-ROE Trustee 17 February 2022
None on record
Claire Kirby Trustee 26 November 2020
None on record
Hilary Lewis Trustee 28 November 2019
THE SUSSEX ASSOCIATION FOR SPINA BIFIDA AND HYDROCEPHALUS
Received: On time
EAST SUSSEX FEDERATION OF WOMEN'S INSTITUTES
Received: 53 days late
Matt West Trustee 25 January 2018
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2019 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £239.75k £267.34k £267.34k £243.27k £230.66k
Total expenditure £242.38k £201.00k £201.00k £226.82k £252.09k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants £11.33k £37.68k £9.46k £25.93k £10.76k

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 26 September 2024 On Time
Accounts and TAR 31 December 2023 26 September 2024 On Time Download Open in new window
Annual return 31 December 2022 31 October 2023 On Time
Accounts and TAR 31 December 2022 31 October 2023 On Time Download Open in new window
Annual return 31 December 2021 01 September 2022 On Time
Accounts and TAR 31 December 2021 01 September 2022 On Time Download Open in new window
Annual return 31 December 2020 30 October 2021 On Time
Accounts and TAR 31 December 2020 30 October 2021 On Time Download Open in new window
Annual return 31 December 2019 28 October 2020 On Time
Accounts and TAR 31 December 2019 28 October 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES INCORPORATED 04 OCT 2017

Charitable objects

THE RELIEF OF PERSONS WHO HAVE SPINA BIFIDA AND/OR HYDROCEPHALUS OR ALLIED RELATED DISORDERS WHO ARE RESIDENT OR WERE FORMALLY RESIDENT IN THE COUNTIES OF EAST AND WEST SUSSEX AND ADJACENT AREAS BY PROVIDING FOR THEIR CARE, WELFARE, TREATMENT, EDUCATION AND INTEGRATION INTO SOCIETY.

Contact information

Address:
The JPK Sussex Project
39-41 Church Street
Old Town
EASTBOURNE
East Sussex
BN21 1HP
Phone:
01825873045
Email:
office@sasbah.org.uk
Website:

http://www.sasbah.org.uk/ Open in new window