WALES ORPHAN AND RARE LUNG DISEASE (WORLD)

Charity number: 1177810
Charity reporting is up to date (36 days late)

Charity overview

Activities - how the charity spends its money

The preservation and protection of good health for the public benefit, by promoting the awareness and understanding of rare lung disease in West Wales. WORLD promotes discussion, engagement, support, knowledge and research.

Income and expenditure

Data for financial year ending 01 April 2024

Total income: £1,172
Total expenditure: £3,642

People

6 Trustee(s)

5 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • Other Defined Groups
How the charity helps:
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout Wales

Governance

Registration history:
  • 04 April 2018: CIO registration
Organisation type:
CIO
Other names:
  • WALES ORPHAN AND RARE LUNG DISEASE (Previous name)
Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Engaging external speakers at charity events policy and procedures
  • Safeguarding policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

6 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Dr Keir Lewis Professor Chair 27 February 2018
Amman Valley Hospital League of Friends
Received: On time
Graham Evans Trustee 23 October 2018
None on record
Sylvia Evans Trustee 23 October 2018
None on record
JOSEPH ANNANDALE Trustee 27 February 2018
None on record
SARAH REES Trustee 27 February 2018
None on record
RACHEL GEMINE BSC, PhD Trustee 27 February 2018
None on record

Financial history

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Financial period end date

Income / Expenditure 01/04/2020 01/04/2021 01/04/2022 01/04/2023 01/04/2024
Total gross income £4.22k £6.05k £2.03k £1.67k £1.17k
Total expenditure £2.95k £2.17k £1.16k £1.29k £3.64k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 01 April 2024 09 March 2025 36 days late
Accounts and TAR 01 April 2024 09 March 2025 36 days late Download Open in new window
Annual return 01 April 2023 24 May 2024 113 days late
Accounts and TAR 01 April 2023 24 May 2024 113 days late Download Open in new window
Annual return 01 April 2022 14 March 2023 41 days late
Accounts and TAR 01 April 2022 14 March 2023 41 days late Download Open in new window
Annual return 01 April 2021 23 March 2022 50 days late
Accounts and TAR 01 April 2021 23 March 2022 50 days late Download Open in new window
Annual return 01 April 2020 05 February 2021 4 days late
Accounts and TAR 01 April 2020 05 February 2021 4 days late Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 04 Apr 2018

Charitable objects

THE PRESERVATION AND PROTECTION OF GOOD HEALTH FOR THE PUBLIC BENEFIT IN WEST WALES, SPECIFICALLY THE COUNTIES OF PEMBROKESHIRE, CEREDIGION AND CARMARTHENSHIRE, BY PROMOTING THE AWARENESS AND UNDERSTANDING OF RARE LUNG DISEASES THROUGH SUCH MEANS AS THE TRUSTEES THINK FIT INCLUDING: -PROVIDING A FORUM FOR RARE LUNG DISEASE PATIENTS AND THEIR CARERS TO MEET AND SHARE EXPERIENCES; -OFFERING EMOTIONAL AND EDUCATIONAL SUPPORT TO RARE LUNG DISEASE PATIENTS, THEIR FAMILIES AND CARERS INCLUDING SIGNPOSTING TO OTHER RELEVANT BODIES; -ENGAGING RESPIRATORY SPECIALISTS TO REFER OTHER PATIENTS TO THE FORUM;

Contact information

Address:
Newton House
Llandyfan
AMMANFORD
Dyfed
SA18 2UD
Phone:
07902036945
Email:
joinusatworld@outlook.com
Website:

joinusatworld.com