MEDICS 4 RARE DISEASES

Charity Number: 1183996
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Medics4RareDiseases is raising awareness of the relevance of rare disease to medical practice in order to relieve sickness of those living with rare diseases. This is achieved through events, learning resources, linking medical professionals with patients and advocates, competitions and creating/promoting other opportunities for medics in the field of rare diseases.

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £259,637
Total expenditure: £228,852

Total income includes £21,450 from 2 government contract(s)

People

6 Trustee(s)

40 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

One or more trustees receive payments or benefits from the charity for providing services to the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Other Defined Groups
  • The General Public/mankind
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Throughout England And Wales
  • Australia
  • Canada
  • Ghana
  • Ireland
  • Northern Ireland
  • Scotland
  • United States

Governance

Registration history:
  • 20 June 2019: Standard registration
Organisation type:
CIO
Other names:
  • M4RD (Working name)
  • Medics for Rare Disease (Working name)
  • MEDICS 4 RARE DISEASES LTD (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

6 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Harriet Gordon-Brown Trustee 23 February 2025
None on record
Professor Russell Hearn Trustee 14 February 2025
None on record
Sheela Updhyaya Trustee 11 February 2025
None on record
Emma Macleod Trustee 04 February 2025
None on record
DANIEL CONRAD JEFFRIES Trustee 25 July 2018
None on record
CHRIS FRANCE Trustee 25 July 2018
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2019 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £9.19k £58.59k £101.33k £135.18k £259.64k
Total expenditure £29.07k £39.54k £74.70k £132.63k £228.85k
Income from government contracts N/A N/A N/A N/A £21.45k
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 03 September 2024 On Time
Accounts and TAR 31 December 2023 03 September 2024 On Time Download Open in new window
Annual return 31 December 2022 17 October 2023 On Time
Accounts and TAR 31 December 2022 17 October 2023 On Time Download Open in new window
Annual return 31 December 2021 27 September 2022 On Time
Accounts and TAR 31 December 2021 27 September 2022 On Time Download Open in new window
Annual return 31 December 2020 22 September 2021 On Time
Accounts and TAR 31 December 2020 22 September 2021 On Time Download Open in new window
Annual return 31 December 2019 11 August 2020 On Time
Accounts and TAR 31 December 2019 11 August 2020 On Time
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION CONVERSION DATED 11 JUL 2022

Charitable objects

THE RELIEF OF SICKNESS AND PRESERVATION OF HEALTH OF THOSE SUFFERING FROM RARE DISEASES, THROUGHOUT THE WORLD, BY: (A) ADVANCING THE EDUCATION OF MEDICS, ASSOCIATED PROFESSIONALS AND THE PUBLIC IN RARE DISEASES, GENETIC AND GENOMIC MEDICINE (B) PROMOTING RESEARCH IN ALL AREAS RELATING TO RARE DISEASES, GENETIC AND GENOMIC MEDICINE AND PUBLISHING THE USEFUL RESULTS (C) PROMOTING IMPROVED CARE AND TREATMENT OF THOSE SUFFERING FROM RARE DISEASES.

Contact information

Address:
c/o Analogue Wonderland Ltd
12 Treadaway Tech Centre
Treadaway Hill
Loudwater
HIGH WYCOMBE
Buckingh
Phone:
01453933025
Email:
info@m4rd.org
Website:

www.m4rd.org Open in new window