Scoliosis Support and Research

Charity number: 1181463
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Scoliosis Association UK and British Scoliosis Research Foundation merged on 1st January 2023 and relaunched as Scoliosis Support and Research on 1st January 2024. We provide support and information to people affected by scoliosis and their families and raise awareness. We fund top quality research into scoliosis and hold an international symposium bringing together world renowned experts.

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £305,790
Total expenditure: £277,359

People

8 Trustee(s)

10 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
How the charity helps:
  • Makes Grants To Individuals
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Acts As An Umbrella Or Resource Body
  • Other Charitable Activities
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 07 January 2019: CIO registration
  • 01 June 2019: Funds received from 285290 SCOLIOSIS ASSOCIATION (UK)
  • 16 August 2023: Funds received from 803772 BRITISH SCOLIOSIS RESEARCH FOUNDATION
Organisation type:
CIO
Other names:
  • Scoliosis Support and Research (Working name)
  • S A U K (Previous name)
  • SAUK (Previous name)
  • SCOLIOSIS ASSOCIATION (UK) (Previous name)
  • SCOLIOSIS ASSOCIATION UK (Previous name)
  • SCOLIOSIS UK (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity owns and/or leases land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

8 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Helen Jane Gale Trustee 20 December 2024
CHARTERED ACCOUNTANTS' BENEVOLENT ASSOCIATION
Received: On time
Jit Hung Julian John Leong Trustee 01 January 2023
None on record
IAN WILKIE NELSON Trustee 01 January 2023
LIGHTHOUSE VINEYARD BRISTOL
Received: On time
Rebecca Weil Trustee 01 January 2023
None on record
James Leigh Zorab Trustee 01 January 2023
None on record
Dr Mohamed Hamza Hilali Idroos Noordeen Trustee 01 January 2023
None on record
Colin Nnadi Trustee 06 May 2020
THE FOUNDATION FOR EARLY ONSET SCOLIOSIS CIO
Received: On time
Dr NICHOLAS ROBERT JONES Trustee 07 January 2019
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £196.96k £161.48k £168.41k £1.05m £305.79k
Total expenditure £194.98k £161.02k £197.74k £189.13k £277.36k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A
Income - Donations and legacies N/A N/A N/A £513.15k N/A
Income - Other trading activities N/A N/A N/A £3.88k N/A
Income - Charitable activities N/A N/A N/A £32.88k N/A
Income - Endowments N/A N/A N/A £0 N/A
Income - Investment N/A N/A N/A £6.81k N/A
Income - Other N/A N/A N/A £493.22k N/A
Income - Legacies N/A N/A N/A £373.26k N/A
Expenditure - Charitable activities N/A N/A N/A £182.94k N/A
Expenditure - Raising funds N/A N/A N/A £6.19k N/A
Expenditure - Governance N/A N/A N/A £0 N/A
Expenditure - Grants institution N/A N/A N/A £0 N/A
Expenditure - Investment management N/A N/A N/A £0 N/A
Expenditure - Other N/A N/A N/A £0 N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 27 January 2025 On Time
Accounts and TAR 31 March 2024 27 January 2025 On Time Download Open in new window
Annual return 31 March 2023 26 January 2024 On Time
Accounts and TAR 31 March 2023 26 January 2024 On Time Download Open in new window
Annual return 31 March 2022 06 December 2022 On Time
Accounts and TAR 31 March 2022 06 December 2022 On Time Download Open in new window
Annual return 31 March 2021 08 December 2021 On Time
Accounts and TAR 31 March 2021 08 December 2021 On Time Download Open in new window
Annual return 31 March 2020 03 January 2021 On Time
Accounts and TAR 31 March 2020 03 January 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION REGISTERED ON REGISTERED ON 07 JAN 2019 AMENDED ON 02 NOV 2022 AMENDED ON 19 JUN 2023 as amended on 11 Jan 2024

Charitable objects

THE OBJECTS OF THE CIO ARE, FOR THE PUBLIC BENEFIT, TO PRESERVE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF PERSONS WITH THE SPINAL CONDITION KNOWN AS SCOLIOSIS AND OTHER SPINAL CONDITIONS, PARTICULARLY BUT NOT EXCLUSIVELY BY: (I) PROVIDING ADVICE, SUPPORT AND INFORMATION TO PEOPLE AFFECTED BY SCOLIOSIS AND OTHER SPINAL CONDITIONS, THEIR FAMILIES AND FRIENDS; (II) RAISING AWARENESS OF SCOLIOSIS AND OTHER SPINAL CONDITIONS AMONG HEALTH PROFESSIONALS AND THE GENERAL PUBLIC; (III) MAKING AVAILABLE TO PATIENTS AND THEIR FAMILIES AND FRIENDS THE EXPERIENCE OF OTHERS WITH SCOLIOSIS AND OTHER SPINAL CONDITIONS; (IV) RAISING AWARENESS ABOUT THE PREVALENCE AND EFFECTS OF SCOLIOSIS AND OTHER SPINAL CONDITIONS; (V) PROMOTING RESEARCH INTO SCOLIOSIS AND OTHER SPINAL CONDITIONS AND MORE PARTICULARLY INTO THEIR CAUSES AND INTO THE CHEST AND HEART CONSEQUENCES THEREOF; (VI) HOLDING THE INTERNATIONAL PHILIP ZORAB SYMPOSIUM, A UNIQUE INTERNATIONAL SCOLIOSIS MEETING, AT A FREQUENCY TO BE DETERMINED BY THE TRUSTEES AND THE ZORAB COMMITTEE CHAIR. NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF SAUK FOR PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005.

Contact information

Address:
Scoliosis Support and Research
Ground Floor
329 Latimer Road
London
Phone:
02089645343
Email:
info@ssr.org.uk
Website:

www.ssr.org.uk Open in new window