International XLH Alliance
Charity number: 1182964
Charity reporting is overdue by 45 days
Charity overview
Activities - how the charity spends its money
To unite and amplify the patient voice by supporting x-linked hypophosphataemia (XLH) groups worldwide and to set a global standard of care and research that ensures all patients receive the care that meets their individual needs.
Income and expenditure
Data for financial year ending 31 January 2024
Total income: £690
Total expenditure: £4,390
People
3 Trustee(s)
Employees with total benefits over £60,000
No information availableFundraising
No information available
Trading
No information available
Trustee payments
No information available
What, who, how, where
What the charity does:
- The Advancement Of Health Or Saving Of Lives
Who the charity helps:
- People With Disabilities
How the charity helps:
- Provides Advocacy/advice/information
Where the charity operates:
- Throughout England And Wales
- Australia
- Austria
- Belgium
- Brazil
- Bulgaria
- Canada
- Chile
- Denmark
- Finland
- France
- Germany
- Guernsey
- Hong Kong
- Hungary
- India
- Ireland
- Isle Of Man
- Israel
- Italy
- Japan
- Jersey
- Netherlands
- Northern Ireland
- Norway
- Portugal
- Scotland
- Spain
- Sweden
- Switzerland
- United States
Governance
Registration history:
- 12 April 2019: Standard registration
Organisation type:
Trust
Other names:
- XLH UK (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
- Complaints handling
- Conflicting interests
- Risk management
- Safeguarding vulnerable beneficiaries
Land and property:
This charity does not own and/or lease land or property
Trustees
Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service
3 Trustee(s)
| Name | Role | Date of appointment | Other trusteeships | Reporting status of other trusteeships | ||||
|---|---|---|---|---|---|---|---|---|
| Oliver Gardiner | Chair | 18 November 2017 |
|
|
||||
| Shannon Sharp | Trustee | 30 June 2022 |
|
|
||||
| Sally Marianne Shaw | Trustee | 29 November 2020 |
|
|
||||
Financial history
Financial period end date
| Income / Expenditure | 31/01/2020 | 31/01/2021 | 31/01/2022 | 31/01/2023 | 31/01/2024 | ||
|---|---|---|---|---|---|---|---|
|
|
Total gross income | £40.24k | £66.73k | £7.53k | £82.14k | £690 | |
|
|
Total expenditure | £395 | £578 | £1.65k | £66.30k | £4.39k | |
|
|
Income from government contracts | N/A | N/A | N/A | N/A | N/A | |
|
|
Income from government grants | N/A | N/A | N/A | N/A | N/A |
Accounts and annual returns
This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
| Title | Reporting year | Date received | Received | Download |
|---|---|---|---|---|
| Annual return | 31 January 2025 | Overdue | Charity reporting is overdue by 45 days | |
| Accounts and TAR | 31 January 2025 | Overdue | Charity reporting is overdue by 45 days | |
| Annual return | 31 January 2024 | 05 December 2024 | 5 days late | |
| Accounts and TAR | 31 January 2024 | Not required | ||
| Annual return | 31 January 2023 | 30 November 2023 | On time | |
| Accounts and TAR | 31 January 2023 | 30 November 2023 | On time | Download Open in new window |
| Annual return | 31 January 2022 | 30 October 2022 | On time | |
| Accounts and TAR | 31 January 2022 | Not required | ||
| Annual return | 31 January 2021 | 13 November 2021 | On time | |
| Accounts and TAR | 31 January 2021 | 13 November 2021 | On time | Download Open in new window |