TREATSMA

Charity Number: 1182610
Charity reporting is up to date (8 days late)

Charity overview

Activities - how the charity spends its money

We do everything possible to ensure that all people with SMA have access to effective treatments, health care and social support. We raise awareness of the disease, offer support to those affected and their near and dear ones, promote and support scientific research into causes and treatments, and provide necessary equipment and living aids.

Income and expenditure

Data for financial year ending 05 April 2024

Total income: £871
Total expenditure: £12,905

People

3 Trustee(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Children/young People
  • People With Disabilities
  • Other Charities Or Voluntary Bodies
  • Other Defined Groups
How the charity helps:
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Other Charitable Activities
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 25 March 2019: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Internal charity financial controls policy and procedures
  • Safeguarding policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

3 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Andrew Thornton Trustee 06 January 2020
None on record
LUCY FROST Trustee 08 August 2018
None on record
Dr GENNADIY ILYASHENKO Trustee 08 August 2018
None on record

Financial history

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Financial period end date

Income / Expenditure 05/04/2020 05/04/2021 05/04/2022 05/04/2023 05/04/2024
Total gross income £17.83k £10.85k £17.65k £18.36k £871
Total expenditure £3.89k £1.92k £2.29k £188 £12.91k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 05 April 2024 13 February 2025 8 days late
Accounts and TAR 05 April 2024 13 February 2025 8 days late Download Open in new window
Annual return 05 April 2023 19 November 2024 288 days late
Accounts and TAR 05 April 2023 19 November 2024 288 days late Download Open in new window
Annual return 05 April 2022 20 February 2023 15 days late
Accounts and TAR 05 April 2022 20 February 2023 15 days late Download Open in new window
Annual return 05 April 2021 08 February 2022 3 days late
Accounts and TAR 05 April 2021 Overdue Charity reporting is overdue by 1209 days
Annual return 05 April 2020 05 February 2021 On Time
Accounts and TAR 05 April 2020 05 February 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 25 Mar 2019

Charitable objects

THE OBJECTS OF THE CIO ARE TO PROMOTE AND PROTECT THE HEALTH AND WELLBEING OF PERSONS WITH SPINAL MUSCULAR ATROPHY, THEIR FAMILIES AND CARERS, IN PARTICULAR BY: (A) ADVANCING KNOWLEDGE IN ALL ASPECTS OF SPINAL MUSCULAR ATROPHY; (B) IMPROVING ACCESS TO APPROPRIATE HEALTHCARE, INCLUDING DIAGNOSTICS, TREATMENTS, AND ASSISTIVE TECHNOLOGIES; AND (C) PROMOTING SOCIAL INCLUSION OF PEOPLE WITH SPINAL MUSCULAR ATROPHY, THEIR FAMILIES AND CARERS

Contact information

Address:
TreatSMA
85 Great Portland St
First Floor
London
W1W 7LT
Phone:
03008000202
Email:
treatsma@treatsma.uk
Website:

https://www.treatsma.uk Open in new window