THE 1P36 FAMILY TRUST

Charity number: 1181988
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome.

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £16,812
Total expenditure: £12,439

People

3 Trustee(s)

2 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • People With Disabilities
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 12 February 2019: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

3 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
REBECCA LOUISE ROLLESTON Chair 07 February 2019
None on record
MARY ROSE DANIELS Trustee 07 February 2019
None on record
GARETH JAMES TWYNAM Trustee 07 February 2019
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £21.31k £3.74k £10.64k £13.40k £16.81k
Total expenditure £7.18k £576 £15.15k £4.60k £12.44k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 02 January 2025 On time
Accounts and TAR 31 March 2024 02 January 2025 On time Download Open in new window
Annual return 31 March 2023 09 October 2023 On time
Accounts and TAR 31 March 2023 09 October 2023 On time Download Open in new window
Annual return 31 March 2022 01 October 2022 On time
Accounts and TAR 31 March 2022 01 October 2022 On time Download Open in new window
Annual return 31 March 2021 23 January 2022 On time
Accounts and TAR 31 March 2021 23 January 2022 On time Download Open in new window
Annual return 31 March 2020 16 January 2021 On time
Accounts and TAR 31 March 2020 16 January 2021 On time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 12 Feb 2019

Charitable objects

THE OBJECTS OF THE CIO ARE: THE ADVANCEMENT OF HEALTH FOR THE PUBLIC BENEFIT BY THE PROVISION OF SUPPORT TO CHILDREN AND ADULTS AFFECTED BY 1P36 DELETION SYNDROME AND THEIR FAMILIES IN THE UK, IN PARTICULAR, BUT NOT EXCLUSIVELY BY ARRANGING A CONFERENCE TO SHARE RESEARCH AND PRACTISE CONCERNING MANAGEMENT OF SYMPTOMS, TREATMENT AND SHARING EDUCATIONAL CONTENT ABOUT 1P36 DELETION SYNDROME.

Contact information

Address:
2 Lambardes
New Ash Green
LONGFIELD
Kent
DA3 8HX
Phone:
07917153834
Email:
1p36familytrust@gmail.com
Website:

www.1p36.co.uk Open in new window