OURBRAINBANK

Charity Number: 1184699
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

OurBrainBank is an an innovative, patient-led movement designed to move glioblastoma (GBM) from terminal to treatable, powered by patients. It's the first non-profit created by, for, and with people with GBM, a rare and deadly brain cancer whose 5-year survival rate is 5%. Our Founder and Chair, Jessica Morris, a British national living in the US, was disgnosed with GBM in January 2016.

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £84,600
Total expenditure: £26,520

People

10 Trustee(s)

1 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Other Defined Groups
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Other Charitable Activities
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 31 July 2019: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

10 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Jake Arnold-Forster Chair 05 September 2019
None on record
Fiona Thorne Trustee 21 March 2024
None on record
Uzmah Yunis Trustee 26 September 2023
None on record
Esther Suzanne Bathers Trustee 09 May 2023
None on record
Alexandra Bennett-Clemmow Trustee 05 July 2022
None on record
Edward Pilkington Trustee 24 June 2022
None on record
Nicola Nuttall Trustee 22 June 2022
None on record
Andrew Coulson Trustee 22 March 2021
None on record
Richard Clemmow Trustee 06 April 2020
None on record
Simon David Matthews Trustee 31 July 2019
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £23.35k £33.04k £18.57k £84.60k
Total expenditure £5.63k £2.80k £20.06k £26.52k
Income from government contracts N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 28 October 2024 On Time
Accounts and TAR 31 December 2023 28 October 2024 On Time Download Open in new window
Annual return 31 December 2022 05 October 2023 On Time
Accounts and TAR 31 December 2022 05 October 2023 On Time Download Open in new window
Annual return 31 December 2021 21 October 2022 On Time
Accounts and TAR 31 December 2021 21 October 2022 On Time Download Open in new window
Annual return 31 December 2020 30 September 2021 On Time
Accounts and TAR 31 December 2020 30 September 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 31 Jul 2019

Charitable objects

THE OBJECTS OF THE CIO ARE TO PRESERVE AND PROTECT THE HEALTH OF PERSONS LIVING WITH GLIOBLASTOMA, IN PARTICULAR BUT NOT EXCLUSIVELY BY: • THE DEVELOPMENT, PROVISION AND MANAGEMENT OF A MOBILE APPLICATION DESIGNED TO HELP PATIENTS MANAGE THEIR DISEASE AND COLLECT ANONYMISED DATA FOR RESEARCH • THE PROVISION OF SUPPORT, ASSISTANCE AND INFORMATION TO PERSONS LIVING WITH GLIOBLASTOMA • CONTRIBUTING TO RESEARCH INTO THE NATURE, CAUSES, DIAGNOSIS, PREVENTION, TREATMENT AND CURE OF GLIOBLASTOMA.

Contact information

Address:
2 Florida Street
LONDON
E2 6AL
Phone:
07885 651841
Email:
ukinfo@ourbrainbank.org
Website:

ourbrainbank.org