INTERNATIONAL CARDIOMYOPATHY NETWORK

Charity Number: 1184472
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Education of healthcare professionals regarding cardiomyopathy and related conditions Promotion of research into cardiomyopathy and related conditions Establishment of best practice in the treatment and management of cardiomyopathy and related conditions

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £45,721
Total expenditure: £104,980

People

10 Trustee(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • People With Disabilities
How the charity helps:
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Belgium
  • France
  • Germany
  • Greece
  • Ireland
  • Italy
  • Netherlands
  • Spain
  • United States

Governance

Registration history:
  • 18 July 2019: CIO registration
Organisation type:
CIO
Other names:
  • ICON (Working name)
Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

10 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Prof. Perry Mark Elliott Chair 18 July 2019
None on record
Prof. Guiseppe Limongelli Trustee 23 February 2024
None on record
Prof. Jolanda Van Der Velden Trustee 12 April 2021
None on record
Prof. Eloisa Arbustini Trustee 18 July 2019
None on record
Dr Juan Ramon Gimeno Blanes Trustee 18 July 2019
None on record
Dr Aristides Anastasakis Trustee 18 July 2019
None on record
Prof. Ales Linhart Trustee 18 July 2019
None on record
Dr Lucie Carrier Trustee 18 July 2019
None on record
Dr Juan Pablo Kaski Trustee 18 July 2019
None on record
Professor Iacopo Olivotto Trustee 18 July 2019
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £0 £0 £120.36k £45.72k
Total expenditure £0 £0 £41.77k £104.98k
Income from government contracts N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 22 October 2024 On Time
Accounts and TAR 31 December 2023 22 October 2024 On Time Download Open in new window
Annual return 31 December 2022 21 June 2023 On Time
Accounts and TAR 31 December 2022 05 July 2023 On Time Download Open in new window
Annual return 31 December 2021 31 August 2022 On Time
Accounts and TAR 31 December 2021 01 September 2022 On Time Download Open in new window
Annual return 31 December 2020 07 September 2021 On Time
Accounts and TAR 31 December 2020 26 October 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 18 Jul 2019

Charitable objects

(1) TO ADVANCE THE EDUCATION OF HEALTHCARE PROFESSIONAL ON THE SUBJECT OF CARDIOMYOPATHY AND RELATED DISEASES OF THE HEART MUSCLE THROUGH THE PROVISION OF EDUCATIONAL LEARNING OPPORTUNITIES AND OTHER METHODS THAT TRUSTEES SEE FIT SO AS TO IMPROVE THE DETECTION AND TREATMENT OF SUCH DISEASES FOR THE PUBLIC BENEFIT. (2) TO IMPROVE THE HEALTH OF PEOPLE AFFECTED BY CARDIOMYOPATHY AND RELATED DISEASES OF THE HEART MUSCLE THROUGH THE PROMOTION AND FACILITATION OF RESEARCH FOR THE PUBLIC BENEFIT IN ALL ASPECTS OF CARDIOMYOPATHY AND RELATED DISEASES OF THE HEART MUSCLE BY PROVIDING NETWORKING OPPORTUNITIES FOR RESEARCHERS, SUPPORT AND ADVICE TO RESEARCHERS AND OTHER MEANS TRUSTEES SEE FIT. (3) TO ADVANCE THE EDUCATION OF HEALTHCARE PROFESSIONALS WORLDWIDE THROUGH THE DISSEMINATION OF THE RESULTS OF RESEARCH INTO CARDIOMYOPATHY AND RELATED DISEASES OF THE HEART MUSCLE. (4) TO IMPROVE THE HEALTH OF PEOPLE AFFECTED BY CARDIOMYOPATHY AND DISEASES OF THE HEART MUSCLE WORLDWIDE THROUGH THE CREATION, MONITORING AND DEVELOPMENT OF RELEVANT GUIDANCE ON THE TREATMENT OF SUCH DISEASES. (5) TO IMPROVE THE HEALTH OF PEOPLE AFFECTED BY CARDIOMYOPATHY WORLDWIDE THROUGH COLLABORATION WITH RELEVANT STAKEHOLDERS IN ADVOCATING FOR IMPROVE ACCESS TO TREATMENT FOR PEOPLE AFFECTED BY SUCH DISEASES. (6) TO INCREASE AWARENESS OF CARDIOMYOPATHY AND RELATED DISORDERS AMONG THE GENERAL PUBLIC AND THE SUPPORT AND INFORMATION AVAILABLE TO PEOPLE WITH CARDIOMYOPATHY AND RELATED CONDITIONS.

Contact information

Address:
C/O Cardiomyopathy UK
75a Woodside Road
Amersham
Buckinghamshire
Phone:
01494791224
Email:
joel@cardiomyopathy-icon.org
Website:

No information available