DOWN SYNDROME UK

Charity number: 1184564
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Down Syndrome UK works to improve the lives of people with Down syndrome, and their families. We primarily work in maternity care and early years, providing resources, training and support to parents and professionals to empower those with Down syndrome to thrive and flourish.

Income and expenditure

Data for financial year ending 31 August 2024

Total income: £378,974
Total expenditure: £361,055

People

6 Trustee(s)

150 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • Education/training
  • Disability
  • Human Rights/religious Or Racial Harmony/equality Or Diversity
Who the charity helps:
  • Children/young People
  • People With Disabilities
How the charity helps:
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 24 July 2019: CIO registration
Organisation type:
CIO
Other names:
  • DSUK (Working name)
  • PADS (Working name)
  • Positive About Down Syndrome (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

6 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Casimir Stephen Bower Knight Chair 12 January 2022
None on record
James Fox Trustee 15 October 2024
None on record
Dr Ayesha Mahmud Trustee 01 November 2023
None on record
Richard Francis Baker Trustee 15 February 2023
None on record
Judith Frances Simpson Trustee 12 January 2022
None on record
CAROLINE WARREN Trustee 24 July 2019
SCORFEN CHARITABLE TRUST
Received: On time
NATIONAL DOWN SYNDROME POLICY GROUP
Received: On time

Financial history

" role="img"> Text alternative for this canvas graphic is in the data table below.

Financial period end date

Income / Expenditure 31/08/2020 31/08/2021 31/08/2022 31/08/2023 31/08/2024
Total gross income £25.27k £191.97k £245.69k £317.27k £378.97k
Total expenditure £5.10k £93.08k £253.10k £321.05k £361.06k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 August 2024 26 June 2025 On time
Accounts and TAR 31 August 2024 26 June 2025 On time
Annual return 31 August 2023 27 June 2024 On time
Accounts and TAR 31 August 2023 27 June 2024 On time
Annual return 31 August 2022 29 June 2023 On time
Accounts and TAR 31 August 2022 29 June 2023 On time
Annual return 31 August 2021 26 June 2022 On time
Accounts and TAR 31 August 2021 26 June 2022 On time
Annual return 31 August 2020 25 June 2021 On time
Accounts and TAR 31 August 2020 25 June 2021 On time
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 24 Jul 2019

Charitable objects

TO RELIEF OF THOSE IN NEED BY REASON OF PARENTS AND FAMILIES OF CHILDREN AND YOUNG PEOPLE WITH DOWN SYNDROME IN THE UK THROUGH THE PROVISION OF A FORUM THAT PROVIDES ACCURATE UP TO DATE INFORMATION ON THE REALITIES OF LIVING WITH DOWN SYNDROME AND IS A CENTRAL HUB OF INFORMATION AND RESOURCES FOR THE CONDITION

Contact information

Address:
Down Syndrome UK
483 Green Lanes
LONDON
N13 4BS
Phone:
03301112121
Email:
info@downsyndromeuk.co.uk
Website:

www.downsyndromeuk.co.uk Open in new window