OSTEOGENESIS IMPERFECTA FOUNDATION NETWORK

Charity number: 1190022
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

The Osteogenesis Imperfecta Foundation Network support those living with Osteogenesis Imperfecta (OI). Our purposes are to: promote public awareness on the condition, provide information, give advice support and provide equipment to anyone affected by OI; making connections to both the medical community and those living with OI for treatment purposes where necessary.

Income and expenditure

Data for financial year ending 31 December 2024

Total income: £3,000
Total expenditure: £3,000

Total income includes £3,000 from 3000 government grant(s)

People

4 Trustee(s)

4 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
  • The Prevention Or Relief Of Poverty
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • Other Charities Or Voluntary Bodies
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
  • Other Charitable Activities
Where the charity operates:
  • Throughout England And Wales
  • Botswana
  • Ghana
  • Kenya
  • Nigeria

Governance

Registration history:
  • 19 June 2020: CIO registration
Organisation type:
CIO
Other names:
  • OIFN (Working name)
Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Engaging external speakers at charity events policy and procedures
  • Internal risk management policy and procedures
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

4 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Tarela Aghanti Chair 18 March 2019
None on record
Maureen Ebiere Whitehead Trustee 18 March 2019
None on record
Blandine Davies Trustee 18 March 2019
None on record
Caroline Harrigan Trustee 18 March 2019
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2020 31/12/2021 31/12/2022 31/12/2023 31/12/2024
Total gross income £100 £243 £1.05k £12.00k £3.00k
Total expenditure £80 £115 £688 £11.00k £3.00k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A £10.00k £3.00k

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2024 10 March 2025 On time
Accounts and TAR 31 December 2024 10 March 2025 On time Download Open in new window
Annual return 31 December 2023 15 January 2024 On time
Accounts and TAR 31 December 2023 15 January 2024 On time Download Open in new window
Annual return 31 December 2022 03 November 2023 3 days late
Accounts and TAR 31 December 2022 03 November 2023 3 days late Download Open in new window
Annual return 31 December 2021 26 April 2022 On time
Accounts and TAR 31 December 2021 26 April 2022 On time Download Open in new window
Annual return 31 December 2020 26 April 2022 177 days late
Accounts and TAR 31 December 2020 26 April 2022 177 days late Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 19 Jun 2020

Charitable objects

1)THE RELIEF OF POVERTY FOR THE PUBLIC BENEFIT IN ANY PART OF THE WORLD THROUGH THE PROVISION OF ADVICE, SUPPORT, GRANTS, EQUIPMENT, TREATMENTS AND CARE TO THOSE THAT SUFFER FROM OSTEOGENESIS IMPERFECTA; AND 2)TO PRESERVE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT BY PROMOTING, MAINTAINING, IMPROVING AND ADVANCING RESEARCH INTO THE NATURE, CAUSES, DIAGNOSIS, PREVENTION, TREATMENT AND CURE OF OSTEOGENESIS AND TO EDUCATE THE PUBLIC IN ANY PART OF THE WORLD CONCERNING THE NATURE, CAUSES AND EFFECT OF OSTEOGENESIS IMPERFECTA BY PROMOTING, RAISING AWARENESS AND PROVIDING INFORMATION ABOUT IT TO BOTH THE MEDICAL COMMUNITY AND GENERAL POPULATION.

Contact information

Address:
74 Ladies Grove
ST. ALBANS
Hertfordshire
AL3 5TW
Phone:
07868547673
Email:
oifnett@gmail.com
Website:

www.oifn.org Open in new window