BATTEN FIGHTERS FOREVER

Charity number: 1182753
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Batten Fighters Forever is a charity supporting people with Batten Disease by raising awareness of the disease, providing information and where practical help/ support can be found and providing grants to support families with the disease, organisations supporting such families and research into treatments.

Income and expenditure

Data for financial year ending 31 March 2025

Total income: £14,547
Total expenditure: £10,815

People

5 Trustee(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

Main way of carrying out purposes is grant making
What the charity does:
  • Disability
Who the charity helps:
No information available
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 02 April 2019: CIO registration
Organisation type:
CIO
Other names:
  • BFF (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Trustee conflicts of interest policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

5 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Andrew George Hover Chair 02 April 2019
None on record
David Worn Trustee 02 April 2019
None on record
Sarah Beverley Helen Horton Trustee 02 April 2019
None on record
Lisa Kathleen Hover Trustee 02 April 2019
None on record
Sarah Louise Sillince Trustee 02 April 2019
None on record

Financial history

" role="img"> Text alternative for this canvas graphic is in the data table below.

Financial period end date

Income / Expenditure 31/03/2021 31/03/2022 31/03/2023 31/03/2024 31/03/2025
Total gross income £7.36k £15.75k £4.30k £5.04k £14.55k
Total expenditure £7.94k £8.09k £6.28k £4.47k £10.82k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2025 11 November 2025 On time
Accounts and TAR 31 March 2025 11 November 2025 On time Download Open in new window
Annual return 31 March 2024 16 September 2024 On time
Accounts and TAR 31 March 2024 16 September 2024 On time Download Open in new window
Annual return 31 March 2023 24 October 2023 On time
Accounts and TAR 31 March 2023 24 October 2023 On time Download Open in new window
Annual return 31 March 2022 23 October 2022 On time
Accounts and TAR 31 March 2022 23 October 2022 On time Download Open in new window
Annual return 31 March 2021 13 December 2021 On time
Accounts and TAR 31 March 2021 09 June 2021 On time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 02 Apr 2019

Charitable objects

THE OBJECTS OF THE CIO ARE : FOR THE PUBLIC BENEFIT, THE RELIEF OF SICKNESS AND TO ASSIST IN THE TREATMENT AND CARE OF PEOPLE WITH BATTEN DISEASE, IN PARTICULAR BUT NOT EXCLUSIVELY BY: (1) PROVIDING INFORMATION ABOUT BATTEN DISEASE AND WHERE PRACTICAL HELP AND SUPPORT CAN BE FOUND; (2) RAISING PUBLIC AWARENESS ABOUT BATTEN DISEASE AND HOW RESEARCH INTO THE DISEASE AND SUPPORT FOR PEOPLE WITH THE DISEASE, THEIR FAMILIES AND CARERS WILL IMPROVE THE CONDITIONS OF LIFE FOR PEOPLE WITH BATTEN DISEASE. (3) MAKING GRANTS TO (A) PAY FOR PERSONAL CARE, EQUIPMENT AND HOME ADAPTATIONS FOR PEOPLE WITH BATTEN DISEASE; (B) ASSIST IN THE PROVISION OF PRACTICAL HELP, ADVICE, SUPPORT AND RESPITE CARE FOR PEOPLE WITH BATTEN DISEASE, THEIR FAMILIES AND CARERS; (C) FUND RESEARCH INTO BATTEN DISEASE AND THE TREATMENT OF THE DISEASE, PROVIDED THE USEFUL RESULTS OF SUCH RESEARCH ARE PUBLISHED.

Contact information

Address:
4 ASHLEY COTTAGES
VERWOOD ROAD
ASHLEY
RINGWOOD
BH24 2DD
Phone:
01425477316
Email:
battenfightersforever@btinternet.com
Website:

www.battenfightersforever.com Open in new window