Amyloidosis UK

Charity Number: 1183624
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

a) providing information, support and advice to people living with the Condition, their families and carers; b) advocating to ensure that every person has timely and effective diagnosis, treatment and care of the Condition; c) working closely with all stakeholders to facilitate the availability of effective treatments for the Condition. d) funding and supporting research to advance scientif

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £1,533
Total expenditure: £18,297

People

6 Trustee(s)

2 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
No information available
How the charity helps:
  • Makes Grants To Organisations
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Ireland
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 29 May 2019: CIO registration
Organisation type:
CIO
Other names:
  • UK ATTR AMYLOIDOSIS PATIENTS' ASSOCIATION (UKATPA) (Previous name)
Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Conflicting interests
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

6 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Julian Robert Macleod Trustee 20 February 2025
None on record
Paul Pozzo Trustee 19 October 2020
None on record
David Gregory Trustee 27 September 2019
None on record
Ruth Eleanor Bramwell Trustee 01 December 2018
None on record
CARLOS HERAS-PALOU Trustee 01 December 2018
PULVERTAFT HAND CHARITY
Received: On time
THE BRITISH SOCIETY FOR SURGERY OF THE HAND
Received: On time
Vincent Graham Nesan Nicholas Trustee 01 December 2018
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £34.57k £31.26k £33.00k £3.70k £1.53k
Total expenditure £6.00k £9.63k £31.00k £16.43k £18.30k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 30 January 2025 On Time
Accounts and TAR 31 March 2024 30 January 2025 On Time Download Open in new window
Annual return 31 March 2023 10 January 2024 On Time
Accounts and TAR 31 March 2023 10 January 2024 On Time Download Open in new window
Annual return 31 March 2022 11 January 2023 On Time
Accounts and TAR 31 March 2022 10 January 2023 On Time Download Open in new window
Annual return 31 March 2021 02 November 2021 On Time
Accounts and TAR 31 March 2021 02 November 2021 On Time Download Open in new window
Annual return 31 March 2020 05 February 2021 5 days late
Accounts and TAR 31 March 2020 05 February 2021 5 days late Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 29 May 2019 as amended on 21 Feb 2024

Charitable objects

THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH AMONG PEOPLE IN THE UNITED KINGDOM LIVING WITH THE MEDICAL CONDITION ATTR AMYLOIDOSIS (KNOWN AS THE ‘CONDITION’) IN PARTICULAR BUT NOT EXCLUSIVELY BY: A) PROVIDING INFORMATION, SUPPORT AND ADVICE TO PEOPLE LIVING WITH THE CONDITION, THEIR FAMILIES AND CARERS; B) ADVOCATING TO ENSURE THAT EVERY PERSON HAS TIMELY AND EFFECTIVE DIAGNOSIS, TREATMENT AND CARE OF THE CONDITION; C) WORKING CLOSELY WITH ALL STAKEHOLDERS TO FACILITATE THE AVAILABILITY OF EFFECTIVE TREATMENTS FOR THE CONDITION. D) FUNDING AND SUPPORTING RESEARCH TO ADVANCE SCIENTIFIC UNDERSTANDING OF THE CONDITION AND ITS EFFECTIVE TREATMENT AND TO PUBLISH THE USEFUL RESULTS THEREOF FOR THE PUBLIC BENEFIT.

Contact information

Address:
HACKAMOR HOUSE
GROVE LANE
REDLYNCH
SALISBURY
SP5 2NR
Phone:
01725238166
Email:
vince@ttramyloidosis.uk
Website:

www.ukatpa.org Open in new window