MYHRE SYNDROME UK & EUROPE

Charity number: 1187443
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

To provide support, respite & counsel to those suffering with or supporting those who are from Myhre Syndrome. Activites are not limited to interventions, with support & advice, alongside building of Myhre Awareness across the UK, and the building of an Advocacy Group. Strategically, inception of a Myhre Centre of Excellence & strong associations with sister organisation's who share our outlook.

Income and expenditure

Data for financial year ending 06 April 2024

Total income: £516
Total expenditure: £1,636

People

2 Trustee(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

No information available

Trustee payments

No information available

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • Disability
  • Other Charitable Purposes
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Services
  • Provides Advocacy/advice/information
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 20 January 2020: Standard registration
Organisation type:
Trust
Other names:
  • MYHRE SYNDROME UK (Working name)
Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
No policies declared
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

2 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Nigel Jonathon Green Chair 01 January 2020
None on record
Stacey Louise Green Trustee 01 January 2020
None on record

Financial history

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Financial period end date

Income / Expenditure 06/04/2021 06/04/2022 06/04/2023 06/04/2024
Total gross income £2.40k £3.35k £558 £516
Total expenditure £329 £2.82k £1.82k £1.64k
Income from government contracts N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 06 April 2024 15 February 2025 9 days late
Accounts and TAR 06 April 2024 Not required
Annual return 06 April 2023 22 June 2024 137 days late
Accounts and TAR 06 April 2023 Not required
Annual return 06 April 2022 21 January 2023 On time
Accounts and TAR 06 April 2022 Not required
Annual return 06 April 2021 01 February 2022 On time
Accounts and TAR 06 April 2021 Not required
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Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

TRUST DEED DATED 14 JAN 2020

Charitable objects

1) THE RELIEF OF SICKNESS AND PRESERVATION OF HEALTH AMONG THOSE SUFFERING FROM MYHRE SYNDROME, WHO PRIMARILY (BUT NO EXCLUSIVELY) RESIDE IN THE UK, THROUGH THE PROVISION OF: A) ADVICE, COUNSELLING AND SUPPORT TO THOSE SUFFERING FROM MYHRE SYNDROME. B) INFORMATION SHARING PROGRAMMES TO RAISE AWARENESS ON ALL ASPECTS OF MYHRE SYNDROME. C) SUPPORT TO DEVELOP MEDICAL PRACTICES RELATING TO THE DIAGNOSES AND TREATMENT OF MYHRE SYNDROME. 2) TO RELIEVE THE NEEDS OF THOSE SUFFERING FROM MYHRE SYNDROME, AND THEIR FAMILIES, WHO PRIMARILY (BUT NO EXCLUSIVELY) RESIDE IN THE UK, THROUGH THE PROVISION OF RESPITE, ADVICE AND SUPPORT.

Contact information

Address:
42 Coronel Close
SWINDON
SN3 4FW
Phone:
07771541080
Email:
myhresyndrome@btinternet.com
Website:

www.myhresyndrome.com Open in new window