Details of the type of governing document the charity has and when it was established. It is not the full text of the charity's governing document.
TRUST DEED DATED 14 JAN 2020
Charitable objects
1) THE RELIEF OF SICKNESS AND PRESERVATION OF HEALTH AMONG THOSE SUFFERING FROM MYHRE SYNDROME, WHO PRIMARILY (BUT NO EXCLUSIVELY) RESIDE IN THE UK, THROUGH THE PROVISION OF:
A) ADVICE, COUNSELLING AND SUPPORT TO THOSE SUFFERING FROM MYHRE SYNDROME.
B) INFORMATION SHARING PROGRAMMES TO RAISE AWARENESS ON ALL ASPECTS OF MYHRE SYNDROME.
C) SUPPORT TO DEVELOP MEDICAL PRACTICES RELATING TO THE DIAGNOSES AND TREATMENT OF MYHRE SYNDROME.
2) TO RELIEVE THE NEEDS OF THOSE SUFFERING FROM MYHRE SYNDROME, AND THEIR FAMILIES, WHO PRIMARILY (BUT NO EXCLUSIVELY) RESIDE IN THE UK, THROUGH THE PROVISION OF RESPITE, ADVICE AND SUPPORT.
