THE SMITH-MAGENIS SYNDROME (SMS) FOUNDATION UK CIO

Charity Number: 1186647
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Our Vision: Every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community. Our Mission: The Smith-Magenis Syndrome (SMS) Foundation UK shall be at the heart of our community of individuals, families, carers and professionals living and working with Smith-Magenis Syndrome and we will be the first point of contact for those seeking information

Income and expenditure

Data for financial year ending 30 June 2024

Total income: £81,579
Total expenditure: £84,648

People

9 Trustee(s)

8 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • People With Disabilities
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 28 November 2019: CIO registration
  • 30 December 2021: Funds received from 1072573 THE SMITH-MAGENIS SYNDROME (S.M.S.) FOUNDATION UK
Organisation type:
CIO
Other names:
  • THE SMITH-MAGENIS SYNDROME (S.M.S.) FOUNDATION UK (Previous name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

9 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Hazel Wotherspoon Chair 17 November 2019
None on record
Andrew Bird Trustee 05 February 2025
None on record
Alistair Hudson Trustee 05 February 2025
None on record
Alvar de Wolff Trustee 05 February 2025
None on record
Laurie Grainger Trustee 05 February 2025
None on record
Jacqueline Jenkins Trustee 01 July 2023
None on record
Jayne Marie Dainty Trustee 25 January 2022
None on record
Emma Riddell Trustee 17 November 2019
None on record
Michael Pearson Trustee 16 November 2019
None on record

Financial history

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Financial period end date

Income / Expenditure 30/06/2020 30/06/2021 30/06/2022 30/06/2023 30/06/2024
Total gross income £13.39k £78.47k £105.69k £82.98k £81.58k
Total expenditure £7.70k £98.21k £135.11k £89.73k £84.65k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 30 June 2024 15 April 2025 On Time
Accounts and TAR 30 June 2024 15 April 2025 On Time Download Open in new window
Annual return 30 June 2023 25 January 2024 On Time
Accounts and TAR 30 June 2023 25 January 2024 On Time Download Open in new window
Annual return 30 June 2022 23 March 2023 On Time
Accounts and TAR 30 June 2022 23 March 2023 On Time Download Open in new window
Annual return 30 June 2021 20 December 2021 On Time
Accounts and TAR 30 June 2021 20 December 2021 On Time Download Open in new window
Annual return 30 June 2020 13 January 2021 On Time
Accounts and TAR 30 June 2020 13 January 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 28 Nov 2019 as amended on 22 Feb 2021

Charitable objects

THE OBJECTS OF THE CIO ARE: A) TO PRESERVE AND PROTECT THE HEALTH AND PROMOTE THE RELIEF OF PERSONS AFFECTED BY SMITH-MAGENIS SYNDROME AND ANY ASSOCIATED CONDITION, B) TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF SMITH-MAGENIS SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY, C) TO ADVANCE PUBLIC EDUCATION BY PROMOTING RESEARCH INTO THE MANAGEMENT OF SMITH-MAGENIS SYNDROME AND TO PUBLISH USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING RESEARCH INTO SMITH-MAGENIS SYNDROME.

Contact information

Address:
61 High Street
PEWSEY
Wiltshire
SN9 5AF
Phone:
03001010034
Email:
info@smith-magenis.co.uk
Website:

www.smith-magenis.org Open in new window