H-ABC FOUNDATION UK
Charity overview
Activities - how the charity spends its money
H-abc Foundation UK aims to raise awareness of the rare disease H-abc, fund research into a cure and treatment and support families that have received a diagnosis.
Income and expenditure
Data for financial year ending 30 April 2025
People
5 Trustee(s)
1 Volunteer(s)
Employees with total benefits over £60,000
No information availableFundraising
Trading
Trustee payments
What, who, how, where
- The Advancement Of Health Or Saving Of Lives
- Other Defined Groups
- Provides Advocacy/advice/information
- Sponsors Or Undertakes Research
- Throughout England And Wales
- United States
Governance
- 13 July 2020: Standard registration
No other names
- Complaints policy and procedures
- Conflicting interests
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Investing charity funds policy and procedures
- Safeguarding policy and procedures
- Serious incident reporting policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
- Volunteer management
Trustees
Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service
5 Trustee(s)
| Name | Role | Date of appointment | Other trusteeships | Reporting status of other trusteeships | ||||
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| Alan Yuk Lun Tang | Chair | 02 October 2019 |
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| Alison Esme Candy-Waters | Trustee | 01 June 2021 |
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| Amy Sheridan-Hill | Trustee | 02 October 2019 |
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| Dr Michelle Teng | Trustee | 02 October 2019 |
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| Gregory Hill | Trustee | 02 October 2019 |
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Financial history
Financial period end date
| Income / Expenditure | 30/04/2021 | 30/04/2022 | 30/04/2023 | 30/04/2024 | 30/04/2025 | ||
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Total gross income | £127.26k | £51.19k | £28.46k | £5.01k | £23.98k | |
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Total expenditure | £96.61k | £5.17k | £15.69k | £22.72k | £34.99k | |
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Income from government contracts | N/A | N/A | N/A | N/A | N/A | |
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Income from government grants | N/A | N/A | N/A | N/A | N/A |
Accounts and annual returns
| Title | Reporting year | Date received | Received | Download |
|---|---|---|---|---|
| Annual return | 30 April 2025 | 10 December 2025 | On time | |
| Accounts and TAR | 30 April 2025 | Not required | ||
| Annual return | 30 April 2024 | 02 January 2025 | On time | |
| Accounts and TAR | 30 April 2024 | Not required | ||
| Annual return | 30 April 2023 | 27 February 2024 | On time | |
| Accounts and TAR | 30 April 2023 | 27 February 2024 | On time | Download Open in new window |
| Annual return | 30 April 2022 | 21 February 2023 | On time | |
| Accounts and TAR | 30 April 2022 | 21 February 2023 | On time | Download Open in new window |
| Annual return | 30 April 2021 | 01 February 2022 | On time | |
| Accounts and TAR | 30 April 2021 | 01 February 2022 | On time | Download Open in new window |
Governing document
It is not the full text of the charity's governing document.
CONSTITUTION ADOPTED 25 NOV 2019 AS AMENDED ON 02 JUL 2020
Charitable objects
1.TO RELIEVE THE NEEDS OF HYPOMYELINATION WITH ATROPHY OF BASAL GANGLIA AND CEREBELLUM (H-ABC)SUFFERERS AND THEIR FAMILIES IN PARTICULAR, BUT NOT EXCLUSIVELY,BY: - A)PROVIDING HELP, SUPPORT AND ADVICE TO FAMILIES FROM OUR OWN EXPERIENCE. B)PROMOTING AWARENESS AND UNDERSTANDING OF HYPOMYELINATION WITH ATROPHY OF BASAL GANGLIA AND CEREBELLUM (H-ABC) C)SUPPORTING RESEARCH THAT IS DEDICATED TO HYPOMYELINATION WITH ATROPHY OF BASAL GANGLIA AND CEREBELLUM (H-ABC), THE USEFUL RESULTS OF WHICH SHALL BE PUBLISHED
Contact information
- Address:
-
15 Belle Vue Road
WARE
Hertfordshire
SG12 7BD
- Phone:
- 07961179548
- Email:
- amy@habcfoundationuk.co.uk
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