CURE CLCN4 LTD

Charity number: 1190344
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

We are a registered charity aimed at providing support, raising awareness and funding medical research for effective treatments for CLCN4. CLCN4 is a rare genetic condition that causes intellectual disability and other problems such as epilepsy, behavioural disorders, movement disorders and microcephaly.

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £78,479
Total expenditure: £118,510

People

6 Trustee(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • The General Public/mankind
How the charity helps:
  • Makes Grants To Organisations
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 10 July 2020: Standard registration
Organisation type:
Charitable company
Other names:

No other names

Company number:
12447230 Open in new window
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding policy and procedures
  • Serious incident reporting policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

6 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Peter James Alistair Trill Chair 06 February 2020
None on record
Paul McGuinness Trustee 07 June 2022
None on record
Alexis Karim Trustee 06 February 2020
None on record
Dr Alan Wise Trustee 06 February 2020
None on record
Larry Louison Trustee 06 February 2020
None on record
Wang Sin Tan Trustee 06 February 2020
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £0 £107.72k £23.49k £78.48k
Total expenditure £8.55k £33.10k £45.35k £118.51k
Income from government contracts N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 11 February 2024 On Time
Accounts and TAR 31 December 2023 11 February 2024 On Time Download Open in new window
Annual return 31 December 2022 24 October 2023 On Time
Accounts and TAR 31 December 2022 Not Required
Annual return 31 December 2021 27 October 2022 On Time
Accounts and TAR 31 December 2021 27 October 2022 On Time Download Open in new window
Annual return 31 December 2020 31 October 2021 On Time
Accounts and TAR 31 December 2020 Not Required
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES INCORPORATED 06 FEB 2020

Charitable objects

THE OBJECTS OF THE CHARITY ARE: (A) THE ADVANCEMENT OF HEALTH, RELIEF OF SICKNESS AND SAVING OF LIVES BY SUCH MEANS AS THE TRUSTEES SEE FIT INCLUDING BUT NOT EXCLUSIVELY THROUGH: (I) PROVIDING RELIEF AND ASSISTANCE TO PEOPLE SUFFERING FROM PATHOGENIC VARIANTS OF CLCN4; AND (II) THE FUNDING OF MEDICAL RESEARCH ANYWHERE IN THE WORLD FOR THE PURPOSE OF DISCOVERING, DEVELOPING AND DELIVERING TREATMENT FOR PATIENTS WITH PATHOGENIC VARIANTS OF CLCN4; AND (B) THE FURTHERANCE OF SUCH OTHER CHARITABLE PURPOSE OR CHARITABLE PURPOSES AS THE TRUSTEES IN THEIR ABSOLUTE DISCRETION FROM TIME TO TIME THINK FIT, IN EACH CASE FOR THE PUBLIC BENEFIT.

Contact information

Address:
2 Duke Street
London
W1U 3EH
Phone:
+442079350992
Email:
peter.t@cureclcn4.org
Website:

https://cureclcn4.org Open in new window