CDLS - HOPE FOR HASTI

Charity number: 1188769
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Hope for Hasti provides grants to organisations conducting research on Cornelia de Lange Syndrome (CdLS), and guides research projects with the aim of finding treatments for this rare genetic condition.

Income and expenditure

Data for financial year ending 30 March 2024

Total income: £67,677
Total expenditure: £25,446

People

5 Trustee(s)

2 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Other Defined Groups
How the charity helps:
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 25 March 2020: CIO registration
Organisation type:
CIO
Other names:
  • HOPE FOR HASTI (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

5 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Christopher Brannigan Chair 25 March 2020
None on record
SEBASTIAN PEARCE Trustee 25 March 2020
None on record
DAVID RUTHERFORD PLAYER Trustee 25 March 2020
None on record
KEITH GODDARD Trustee 25 March 2020
None on record
Hengameh Delfaninejad Trustee 25 March 2020
None on record

Financial history

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Financial period end date

Income / Expenditure 30/03/2021 30/03/2022 30/03/2023 30/03/2024
Total gross income £897.10k £269.68k £32.17k £67.68k
Total expenditure £29.39k £108.34k £23.23k £25.45k
Income from government contracts N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A
Income - Donations and legacies £897.05k N/A N/A N/A
Income - Other trading activities £0 N/A N/A N/A
Income - Charitable activities £0 N/A N/A N/A
Income - Endowments £0 N/A N/A N/A
Income - Investment £0 N/A N/A N/A
Income - Other £46 N/A N/A N/A
Income - Legacies £0 N/A N/A N/A
Expenditure - Charitable activities £25.33k N/A N/A N/A
Expenditure - Raising funds £2.02k N/A N/A N/A
Expenditure - Governance £0 N/A N/A N/A
Expenditure - Grants institution £0 N/A N/A N/A
Expenditure - Investment management £0 N/A N/A N/A
Expenditure - Other £2.04k N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 30 March 2024 30 January 2025 On Time
Accounts and TAR 30 March 2024 30 January 2025 On Time Download Open in new window
Annual return 30 March 2023 03 January 2024 On Time
Accounts and TAR 30 March 2023 03 January 2024 On Time Download Open in new window
Annual return 30 March 2022 31 August 2022 On Time
Accounts and TAR 30 March 2022 31 August 2022 On Time Download Open in new window
Annual return 30 March 2021 25 January 2022 On Time
Accounts and TAR 30 March 2021 25 January 2022 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 25 Mar 2020

Charitable objects

THE OBJECTS OF THE CIO IS: FOR THE PUBLIC BENEFIT, THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH AMONG PEOPLE SUFFERING FROM CORNELIA DE LANGE SYNDROME (CDLS) IN PARTICULAR BY: (1) PROVIDING GRANTS OF FINANCIAL ASSISTANCE TO ORGANISATIONS AND INDIVIDUALS UNDERTAKING RESEARCH INTO CORNELIA DE LANGE SYNDROME (CDLS) ANYWHERE IN THE WORLD, THE USEFUL RESULTS OF WHICH WILL BE DISSEMINATED FOR THE PUBLIC BENEFIT. (2) ESTABLISHING AND OPERATING A PATIENT REGISTRY FOR PERSONS SUFFERING FROM CORNELIA DE LANGE SYNDROME (CDLS) ANYWHERE IN THE WORLD AS A MEANS TO SUPPORT CLINICAL TRIALS, STUDIES AND RESEARCH INTO THE CONDITION.

Contact information

Address:
7 Bucks Close
WEST BYFLEET
Surrey
KT14 6RU
Phone:
07920162569
Email:
hello@hopeforhasti.org
Website:

www.hopeforhasti.org Open in new window