HUNTINGTON DISEASE LIVIN

Charity number: 1190072
Charity reporting is up to date (14 days late)

Charity overview

Activities - how the charity spends its money

As a recently established charity we are raising funds to create purpose built Respite Centres. In the past 12 months we have adapted our fundraising to accommodate Covid restrictions. Events included Launch party in Plymouth (just got in before lockdown) & sponsored walk. Many Activities were moved to online including - Raffles, Bingo, Quiz's & Selling donated items on our on line shop.

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £41,872
Total expenditure: £16,682

People

3 Trustee(s)

50 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • The General Public/mankind
How the charity helps:
  • Provides Services
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 23 June 2020: CIO registration
Organisation type:
CIO
Other names:
  • HD LIVIN’ (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

3 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Anthony Lomas Chair 02 March 2020
None on record
Richard Gregory James Woods Trustee 05 April 2025
None on record
Miles Monaghan Trustee 02 March 2020
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2020 31/12/2021 31/12/2022 31/12/2023
Total gross income £17.00k £35.25k £21.59k £41.87k
Total expenditure £6.49k £11.54k £11.78k £16.68k
Income from government contracts N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 14 November 2024 14 days late
Accounts and TAR 31 December 2023 14 November 2024 14 days late Download Open in new window
Annual return 31 December 2022 31 October 2023 On Time
Accounts and TAR 31 December 2022 31 October 2023 On Time Download Open in new window
Annual return 31 December 2021 31 October 2022 On Time
Accounts and TAR 31 December 2021 31 October 2022 On Time Download Open in new window
Annual return 31 December 2020 31 October 2021 On Time
Accounts and TAR 31 December 2020 31 October 2021 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 23 Jun 2020

Charitable objects

THE OBJECTS OF THE CIO ARE TO PRESERVE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT BY:-- (1) PROVIDING RELIEF FOR FULL TIME CARERS ACROSS ENGLAND, THROUGH DELIVERING TEMPORARY INSTITUTIONAL CARE FOR (BUT NOT EXCLUSIVELY FOR) PEOPLE WHO SUFFER FROM HUNTINGTONÆS DISEASE OR JUVENILE HUNTINGTONÆS DISEASE (PEOPLE SUFFERING FROM OTHER ILLNESSES THAT REQUIRE FULL TIME CARE CAN BE CATERED FOR IF SPACE IS AVAILABLE); AND (2) TO PROVIDE SAFE AN ENJOYABLE MEETING PLACES ACROSS ENGLAND WHERE ANYONE IMPACTED BY HUNTINGTONÆS DISEASE OR JUVENILE HUNTINGTONÆS DISEASE (SUFFERERS, FAMILIES, FRIENDS AND CARERS) CAN GO TO SUPPORT EACH OTHER AND GET PROFESSIONAL ADVICE THROUGH IN PARTICULARLY BUT NOT EXCLUSIVELY DROP IN SESSIONS, COFFEE MORNINGS AND OTHER SOCIAL EVENTS.

Contact information

Address:
1 Oakdene Rise
PLYMOUTH
PL9 8RU
Phone:
07813028670
Email:
theteam@hdlivin.org.uk
Website:

www.hdlivin.org.uk Open in new window