CURE MYOTONIC DYSTROPHY UK CHARITY (CDM)

Charity Number: 1191217
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Preserve and protect good health among, and relieve the needs of, people living with Myotonic Dystrophy, their families and carers, in particular but not exclusively by: (a) providing information, help and support; (b) making financial donations to support research into Myotonic Dystrophy; (c) raising awareness of Myotonic Dystrophy within the general public, medical and scientific community

Income and expenditure

Data for financial year ending 05 April 2024

Total income: £64,030
Total expenditure: £78,232

People

6 Trustee(s)

2 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

One or more trustees are also directors of the subsidiaries

Trustee payments

One or more trustees receive payments or benefits from the charity for providing services to the charity.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
  • Other Charitable Purposes
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • Other Charities Or Voluntary Bodies
  • The General Public/mankind
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Other Charitable Activities
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 09 September 2020: CIO registration
Organisation type:
CIO
Other names:
  • CURE DM (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

6 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Peter Robert Ashley Chair 11 August 2020
None on record
Dr Wendy Greenwood Trustee 14 December 2023
None on record
Tamsyn Tait Trustee 04 January 2023
None on record
Liam Garwood Trustee 04 January 2023
None on record
Stephen Uncles Trustee 11 August 2020
None on record
Emma-Jayne Ashley Mrs Trustee 11 August 2020
None on record

Financial history

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Financial period end date

Income / Expenditure 05/04/2021 05/04/2022 05/04/2023 05/04/2024
Total gross income £19.60k £37.14k £52.01k £64.03k
Total expenditure £2.85k £17.51k £53.66k £78.23k
Income from government contracts N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 05 April 2024 07 August 2024 On Time
Accounts and TAR 05 April 2024 07 August 2024 On Time Download Open in new window
Annual return 05 April 2023 06 October 2023 On Time
Accounts and TAR 05 April 2023 06 October 2023 On Time Download Open in new window
Annual return 05 April 2022 06 July 2022 On Time
Accounts and TAR 05 April 2022 06 July 2022 On Time Download Open in new window
Annual return 05 April 2021 25 January 2022 On Time
Accounts and TAR 05 April 2021 25 January 2022 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 09 Sep 2020

Charitable objects

THE OBJECTS OF THE CIO ARE: TO PRESERVE AND PROTECT GOOD HEALTH AMONG, AND RELIEVE THE NEEDS OF, PEOPLE LIVING WITH MYOTONIC DYSTROPHY, THEIR FAMILIES AND CARERS, IN PARTICULAR BUT NOT EXCLUSIVELY BY: (A) PROVIDING INFORMATION, HELP AND SUPPORT TO SUCH PEOPLE AND THEIR FAMILIES AND CARERS; (B) MAKING FINANCIAL DONATIONS TO SUPPORT ORGANISATIONS AND INDIVIDUALS CARRYING OUT RESEARCH INTO MYOTONIC DYSTROPHY, THE USEFUL RESULTS OF WHICH WILL BE PUBLISHED FOR PUBLIC BENEFIT; AND (C) RAISING AWARENESS OF MYOTONIC DYSTROPHY WITHIN THE GENERAL PUBLIC, MEDICAL AND SCIENTIFIC COMMUNITIES.

Contact information

Address:
Riverside View
Station Road
Whitton
SCUNTHORPE
DN15 9LR
Phone:
07757030554
Email:
curedm@outlook.com
Website:

www.curedm.co.uk Open in new window