ALTERNATING HEMIPLEGIA OF CHILDHOOD UK

Charity Number: 1192701
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

To preserve and protect the physical and mental health of families and individuals affected by Alternating Hemiplegia of Childhood (AHC) and associated conditions by:- (a) Providing support and creating and maintaining communication channels between those persons who act as family carers and supporters so as to disseminate knowledge, experience and thereby promote both the health and quality o

Income and expenditure

Data for financial year ending 30 April 2024

Total income: £8,732
Total expenditure: £11,486

People

6 Trustee(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

Main way of carrying out purposes is grant making
What the charity does:
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • The General Public/mankind
How the charity helps:
  • Makes Grants To Organisations
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 08 December 2020: CIO registration
Organisation type:
CIO
Other names:
  • AHC UK (Working name)
Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Financial reserves policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

6 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Johanna Brown Trustee 08 December 2020
None on record
Abhishek Behl Trustee 08 December 2020
None on record
Lyndsey Chand Trustee 08 December 2020
None on record
Katherine Behl Trustee 08 December 2020
None on record
Sue Kemp Trustee 08 December 2020
None on record
Adrian Kowal Trustee 24 November 2020
None on record

Financial history

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Financial period end date

Income / Expenditure 05/04/2022 30/04/2023 30/04/2024
Total gross income £0 £123.14k £8.73k
Total expenditure £0 £45.51k £11.49k
Income from government contracts N/A N/A N/A
Income from government grants N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 30 April 2024 28 February 2025 On Time
Accounts and TAR 30 April 2024 28 February 2025 On Time Download Open in new window
Annual return 30 April 2023 01 March 2024 1 days late
Accounts and TAR 30 April 2023 01 March 2024 1 days late Download Open in new window
Annual return 05 April 2022 26 March 2023 49 days late
Accounts and TAR 05 April 2022 16 April 2023 70 days late Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 08 Dec 2020

Charitable objects

THE OBJECTS OF THE CIO ARE: TO PRESERVE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF FAMILIES AND INDIVIDUALS AFFECTED BY ALTERNATING HEMIPLEGIA OF CHILDHOOD (AHC) AND ASSOCIATED CONDITIONS BY:- (A) PROVIDING SUPPORT AND CREATING AND MAINTAINING COMMUNICATION CHANNELS BETWEEN THOSE PERSONS WHO ACT AS FAMILY CARERS AND SUPPORTERS SO AS TO DISSEMINATE KNOWLEDGE, EXPERIENCE AND THEREBY PROMOTE BOTH THE HEALTH AND QUALITY OF LIFE OF AHC PATIENTS AND THEIR FAMILIES; (B) RAISING AWARENESS AND EDUCATION OF THE MEDICAL PROFESSION AND OTHER RELEVANT PROFESSIONALS (INCLUDING BUT NOT LIMITED TO PSYCHOLOGISTS, CARE WORKERS, SCHOOL TEACHERS, THERAPISTS AND SUCHLIKE), TOGETHER WITH THE GENERAL PUBLIC, ON THE NATURE OF AHC (AND ASSOCIATED CONDITIONS) AND ITS IMPLICATION FOR FAMILIES; (C) ACTING AS AN ADVOCATE WITH PUBLIC SERVANTS AND ORGANISATIONS WITHIN THE UK (OTHER THAN THOSE INCLUDED IN OBJECT 2) SO AS TO BECOME THE VOICE OF AHC FAMILIES; (D) PROMOTING, ENCOURAGING AND FACILITATING RESEARCH INTO THE DIAGNOSIS, EFFECTIVE MANAGEMENT AND THERAPIES, AND POTENTIAL CURATIVE PROCEDURES; AND (E) ESTABLISHING AND MAINTAINING CLOSE LINKS WITH COUNTERPART ORGANISATIONS, RESEARCHERS AND SUCH LIKE THAT ARE BASED OUTSIDE THE UNITED KINGDOM, AND TO DISSEMINATE THE GROWING BODY OF KNOWLEDGE INTO THIS RARE CONDITION AMONGST INTERESTED PERSONS AND PARTIES WITHIN THE UK

Contact information

Address:
75 Charlton Road
SOUTHAMPTON
SO15 5EU
Phone:
07540240626
Email:
adrian@ahcuk.org
Website:

ahcuk.org