GLUT1 DEFICIENCY UK

Charity number: 1192599
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Glut1 Deficiency UK aims to support carers and patients impacted by Glut1DS in the UK and Ireland. Increasing awareness of Glut1 Deficiency Syndrome (Glut1DS) Improved education for families and health professionals in relation to Glut1DS. Advocacy for families and patients impacted by Glut1DS. Support and funding for Glut1DS research

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £3,378
Total expenditure: £3,646

People

3 Trustee(s)

3 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Other Charities Or Voluntary Bodies
How the charity helps:
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout England And Wales
  • Ireland
  • Scotland

Governance

Registration history:
  • 01 December 2020: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Safeguarding policy and procedures
  • Serious incident reporting policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

3 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Trudy Jane Morgan Chair 17 November 2020
None on record
Stefanie Plomer Trustee 27 November 2020
None on record
Sheena Cunniffe Trustee 17 November 2020
None on record

Financial history

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Financial period end date

Income / Expenditure 31/12/2021 31/12/2022 31/12/2023
Total gross income £11.10k £8.52k £3.38k
Total expenditure £1.08k £2.58k £3.65k
Income from government contracts N/A N/A N/A
Income from government grants N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 29 October 2024 On time
Accounts and TAR 31 December 2023 29 October 2024 On time Download Open in new window
Annual return 31 December 2022 24 November 2023 24 days late
Accounts and TAR 31 December 2022 24 November 2023 24 days late Download Open in new window
Annual return 31 December 2021 28 October 2022 On time
Accounts and TAR 31 December 2021 28 October 2022 On time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - ASSOCIATION Registered 01 Dec 2020

Charitable objects

THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH OF PERSONS SUFFERING FROM GLUCOSE TRANSPORTER TYPE 1 DEFICIENCY SYNDROME AND THEIR FAMILIES/CARERS BY: A) THE PROVISION OF SUPPORT, INFORMATION AND ADVICE ABOUT THE TREATMENT AND CARE OF GLUCOSE TRANSPORTER TYPE 1 DEFICIENCY SYNDROME TO SUFFERERS AND TO THEIR FAMILIES/CARERS; B) ADVANCING EDUCATION IN, AND RAISING AWARENESS OF, GLUCOSE TRANSPORTER TYPE 1 DEFICIENCY SYNDROME AMONG THE MEDICAL PROFESSION AND GENERAL PUBLIC.

Contact information

Address:
2 East Grimsby
ARBROATH
Angus
DD11 1PA
Phone:
07903439135
Email:
Hello@glut1deficiency.org.uk
Website:

www.glut1deficiency.org.uk Open in new window