IMMUNODEFICIENCY UK

Charity number: 1193166
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Advancement of health and the relief of people affected by primary and secondary immunodeficiency and their families by providing assistance, advice or guidance in relation to managing their condition, treatment and quality of life; promoting awareness and understanding of these conditions and to encourage and support research into causes, treatments and prevention.

Income and expenditure

Data for financial year ending 01 April 2024

Total income: £89,709
Total expenditure: £112,809

People

6 Trustee(s)

14 Volunteer(s)

Employees with total benefits over £60,000

Number of employees
£60k to £70k 1

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 20 January 2021: CIO registration
Organisation type:
CIO
Other names:
  • PRIMARY IMMUNODEFICIENCY UK (Working name)
Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

6 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Valerie Brisse-Uhlig Chair 21 March 2022
None on record
Thomas Taylor Trustee 20 January 2025
None on record
Clare Elizabeth Anne Brailsford Trustee 16 September 2024
None on record
Annette Toft Trustee 16 September 2024
None on record
Jane Shepard Trustee 21 March 2022
THE PAROCHIAL CHURCH COUNCIL OF THE ECCLESIASTICAL PARISH OF ST MARY, REDCLIFFE
Received: On time
Diane Hammond Trustee 21 March 2022
None on record

Financial history

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Financial period end date

Income / Expenditure 01/04/2022 01/04/2023 01/04/2024
Total gross income £100.45k £131.27k £89.71k
Total expenditure £122.24k £116.43k £112.81k
Income from government contracts N/A N/A N/A
Income from government grants N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 01 April 2024 23 January 2025 On Time
Accounts and TAR 01 April 2024 23 January 2025 On Time Download Open in new window
Annual return 01 April 2023 31 January 2024 On Time
Accounts and TAR 01 April 2023 31 January 2024 On Time Download Open in new window
Annual return 01 April 2022 27 January 2023 On Time
Accounts and TAR 01 April 2022 27 January 2023 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 20 Jan 2021

Charitable objects

THE OBJECTS OF THE CIO ARE, FOR THE PUBLIC BENEFIT: (1) THE ADVANCEMENT OF HEALTH AND THE RELIEF OF PEOPLE AFFECTED BY PRIMARY AND SECONDARY IMMUNODEFICIENCY AND THEIR FAMILIES AND PEOPLE RESPONSIBLE FOR THEIR WELFARE, INCLUDING IN PARTICULAR WITHOUT LIMITATION: (A) BY PROVIDING ASSISTANCE, ADVICE OR GUIDANCE IN RELATION TO MANAGING THEIR CONDITION AND IMPROVING THE DIAGNOSIS OF THESE CONDITIONS, THEIR TREATMENT AND THE QUALITY OF LIFE OF THOSE AFFECTED; (B) PROMOTING AWARENESS AND UNDERSTANDING OF PRIMARY AND SECONDARY IMMUNODEFICIENCY WITHIN THE GENERAL PUBLIC AND MEDICAL PROFESSION IN ORDER TO BETTER UNDERSTAND THESE CONDITIONS AND THEIR IMPACT; AND (C) PROVIDING A HELPLINE SERVICE, EVENTS AND PRACTICAL HELP AND ADVICE. (2) TO ENCOURAGE AND SUPPORT RESEARCH INTO THE CAUSES, TREATMENTS, PREVENTION AND CURES FOR PRIMARY AND SECONDARY IMMUNODEFICIENCY, AND TO PUBLISH THE USEFUL RESULTS OF THAT RESEARCH.

Contact information

Address:
Immunodeficiency UK
C/O Tudor John Accountants
Nightingale House
46-48 East Street
Epsom
KT17 1HQ
Phone:
08009878986
Email:
hello@immunodeficiencyuk.org
Website:

www.immunodeficiencyuk.org Open in new window