FOWLER'S SYNDROME UK

Charity number: 1196903
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

THE ADVANCEMENT OF EDUCATION AMONGST THE MEDICAL PROFESSION AND THE PUBLIC ON THE SYMPTOMS, CAUSES AND TREATMENT OF FOWLERS SYNDROME LIVING IN ENGLAND AND WALES BY OFFERING SUPPORT TO ANYONE CURRENTLY LIVING WITH THIS CONDITION, IN PARTICULAR THROUGH RAISING AWARENESS AND MEDICAL RESEARCH INTO THE CAUSES, COMPLICATIONS, TREATMENTS, MEDICATIONS AND RESEARCH FOR THIS CONDITION.

Income and expenditure

Data for financial year ending 31 December 2023

Total income: £29,820
Total expenditure: £28,074

People

7 Trustee(s)

30 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

One or more of the employees were formerly trustees

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • People With Disabilities
  • Other Defined Groups
How the charity helps:
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Scotland

Governance

Registration history:
  • 03 December 2021: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Paying staff
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

7 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Anne Ingrid Hoeritzauer Chair 28 April 2024
None on record
Jesper Jensen Trustee 23 May 2023
None on record
Konstantinos Charitopoulous Trustee 03 December 2021
None on record
Caroline Petersen Trustee 03 December 2021
None on record
Rory James Layton Knighton Trustee 03 December 2021
None on record
Hannah Marie Edwards Trustee 03 December 2021
None on record
Matthew Coombe Trustee 03 December 2021
None on record

Financial history

" role="img"> Text alternative for this canvas graphic is in the data table below.

Financial period end date

Income / Expenditure 31/12/2022 31/12/2023
Total gross income £40.72k £29.82k
Total expenditure £897 £28.07k
Income from government contracts N/A N/A
Income from government grants N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2023 25 October 2024 On Time
Accounts and TAR 31 December 2023 25 October 2024 On Time Download Open in new window
Annual return 31 December 2022 27 October 2023 On Time
Accounts and TAR 31 December 2022 27 October 2023 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 03 Dec 2021

Charitable objects

THE OBJECTS ARE: THE ADVANCEMENT OF EDUCATION AMONGST THE MEDICAL PROFESSION AND THE PUBLIC ON THE SYMPTOMS, CAUSES AND TREATMENT OF FOWLER’S SYNDROME LIVING IN ENGLAND AND WALES BY OFFERING SUPPORT TO ANYONE CURRENTLY LIVING WITH THIS CONDITION, IN PARTICULAR THROUGH RAISING AWARENESS AND MEDICAL RESEARCH INTO THE CAUSES, COMPLICATIONS, TREATMENTS, MEDICATIONS AND RESEARCH FOR THIS CONDITION.

Contact information

Address:
Fowler's Syndrome UK (FSUK)
42 York Street
TWICKENHAM
London Borough Of Richmond
Upon Thames
TW1 3BW
Phone:
07863339720
Email:
hello@fowlerssyndrome.co.uk
Website:

www.fowlerssyndrome.co.uk Open in new window