INTERNATIONAL NEUROLOGICAL KETOGENIC SOCIETY

Charity number: 1199462
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

(1) promoting the practice, science, global accessibility and implementation of ketogenic dietary therapies for the treatment of epilepsy and the specific neurometabolic disorder GLUT1 deficiency syndrome; (2) promoting research into ketogenic and metabolic therapies for the treatment of brain disorders (3) educating healthcare professionals about ketogenic and metabolic therapies

Income and expenditure

Data for financial year ending 30 June 2024

Total income: £11,429
Total expenditure: £9,225

People

6 Trustee(s)

20 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • The General Public/mankind
How the charity helps:
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Throughout England
  • Argentina
  • Australia
  • China
  • France
  • Germany
  • India
  • South Africa
  • South Korea
  • United States

Governance

Registration history:
  • 28 June 2022: CIO registration
Organisation type:
CIO
Other names:
  • INKS (Working name)
Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Campaigns and political activity policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Engaging external speakers at charity events policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Paying staff
  • Risk management
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

6 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Dr Anita Devlin Chair 11 August 2021
None on record
Beth Zupec-Kania Trustee 11 August 2021
None on record
Professor J Helen Cross MBChBPhD Trustee 11 August 2021
None on record
Dr Marisa Armeno Trustee 11 August 2021
None on record
Dr Jong Min Rho MD Trustee 11 August 2021
None on record
Richard Alan Aldridge CA Trustee 11 August 2021
None on record

Financial history

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Financial period end date

Income / Expenditure 30/06/2023 30/06/2024
Total gross income £66.94k £11.43k
Total expenditure £11.26k £9.23k
Income from government contracts N/A N/A
Income from government grants N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 30 June 2024 18 April 2025 On Time
Accounts and TAR 30 June 2024 18 April 2025 On Time Download Open in new window
Annual return 30 June 2023 28 April 2024 On Time
Accounts and TAR 30 June 2023 28 April 2024 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 28 Jun 2022

Charitable objects

THE ADVANCEMENT OF HEALTH FOR THE PUBLIC BENEFIT BY: (1) PROMOTING THE PRACTICE, SCIENCE, GLOBAL ACCESSIBILITY AND IMPLEMENTATION OF KETOGENIC DIETARY THERAPIES FOR THE TREATMENT OF EPILEPSY AND THE SPECIFIC NEUROMETABOLIC DISORDER GLUT1 DEFICIENCY SYNDROME; (2) PROMOTING RESEARCH INTO KETOGENIC AND METABOLIC THERAPIES FOR THE TREATMENT OF BRAIN DISORDERS AND THE PUBLICATION OF THE USEFUL RESULTS OF SUCH RESEARCH THROUGH COLLABORATION AND EDUCATION; (3) EDUCATING HEALTHCARE PROFESSIONALS ABOUT KETOGENIC AND METABOLIC THERAPIES INCLUDING BY MANAGING AND FACILITATING THE BIENNIAL KETOGENIC THERAPIES GLOBAL SYMPOSIA SERIES.

Contact information

Address:
31 WESTLANDS WAY
OXTED
RH8 0NB
Phone:
01883713246
Email:
info@neuroketo.org
Website:

www.neuroketo.org Open in new window