A RARE CAUSE

Charity overview
Activities - how the charity spends its money
The objects of A Rare Cause (ARC) are the advancement of health or the saving of lives in relation to the global, rare disease community in particular by providing information and resources to raise knowledge and increase awareness.
Income and expenditure
Data for financial year ending 31 December 2023
People

3 Trustee(s)
2 Volunteer(s)
Employees with total benefits over £60,000
No information availableFundraising
Trading
Trustee payments
What, who, how, where
- The Advancement Of Health Or Saving Of Lives
- Children/young People
- Elderly/old People
- People With Disabilities
- Other Charities Or Voluntary Bodies
- Other Defined Groups
- The General Public/mankind
- Provides Services
- Provides Advocacy/advice/information
- Throughout England
- Botswana
- Rwanda
- South Africa
- United States
Governance
- 31 March 2022: CIO registration
- ARC (Working name)
- Bullying and harassment policy and procedures
- Complaints handling
- Conflicting interests
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Safeguarding policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
Trustees
Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service
3 Trustee(s)
Name | Role | Date of appointment | Other trusteeships | Reporting status of other trusteeships | ||||
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Dr Dumebi Oderinde | Trustee | 07 May 2022 |
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Tiffany Wong | Trustee | 07 May 2022 |
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Prof Amaka Offiah | Trustee | 07 May 2022 |
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Financial history
Financial period end date
Income / Expenditure | 31/12/2022 | 31/12/2023 | |
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Total gross income | £0 | £0 |
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Total expenditure | £0 | £0 |
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Income from government contracts | N/A | N/A |
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Income from government grants | N/A | N/A |
Accounts and annual returns
Title | Reporting year | Date received | Received | Download |
---|---|---|---|---|
Annual return | 31 December 2023 | 27 September 2024 | On Time | |
Accounts and TAR | 31 December 2023 | 27 September 2024 | On Time | Download Open in new window |
Annual return | 31 December 2022 | 15 February 2023 | On Time | |
Accounts and TAR | 31 December 2022 | 14 June 2024 | 227 days late | Download Open in new window |
Governing document
It is not the full text of the charity's governing document.
CIO - FOUNDATION Registered 31 Mar 2022
Charitable objects
THE OBJECTS OF THE CIO ARE THE ADVANCEMENT OF HEALTH OR THE SAVING OF LIVES IN RELATION TO THE GLOBAL RARE DISEASE COMMUNITY IN PARTICULAR BY PROVIDING INFORMATION AND RESOURCES TO RAISE KNOWLEDGE AND INCREASE AWARENESS.
Contact information
- Address:
-
6 The Green
Burley In Wharfedale
ILKLEY
West Yorkshire
LS29 7FF
- Phone:
- 07801960480
- Email:
- florence@ararecause.org
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