INTRACTABLE EPILEPSY

Charity number: 1199192
Charity reporting is up to date (189 days late)

Charity overview

Activities - how the charity spends its money

The charity funds prescription costs of medicinal cannabis for those with Intractable Epilepsy when prescribed by a specialist clinician on the GMC register and in line with NHS guidance. The full criteria to qualify for funding are set out in the charity grants policy. Prescription costs will be met strictly in line with our charitable objects.

Income and expenditure

Data for financial year ending 30 November 2023

Total income: £27,481
Total expenditure: £14,405

People

4 Trustee(s)

10 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

Main way of carrying out purposes is grant making
What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • The General Public/mankind
How the charity helps:
  • Makes Grants To Individuals
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 06 June 2022: Standard registration
Organisation type:
Charitable company
Other names:
  • INTRACTABLE EPILEPSY (Previous name)
  • INTRACTABLE EPILEPSY LTD (Previous name)
Company number:
13019024 Open in new window
Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Risk management
  • Safeguarding policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

4 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Graham Howard Levy Chair 06 June 2022
None on record
Christopher Tasker Trustee 15 October 2024
None on record
Karen Gray Trustee 06 June 2022
None on record
Joanne Marjorie Justine Griffiths Trustee 06 June 2022
None on record

Financial history

" role="img"> Text alternative for this canvas graphic is in the data table below.

Financial period end date

Income / Expenditure 30/11/2023
Total gross income £27.48k
Total expenditure £14.41k
Income from government contracts N/A
Income from government grants N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 30 November 2023 07 April 2025 189 days late
Accounts and TAR 30 November 2023 07 April 2025 189 days late Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

MEMORANDUM AND ARTICLES INCORPORATED 15 NOV 2020 AS AMENDED BY SPECIAL RESOLUTION(S) DATED 14 DEC 2020 AS AMENDED BY SPECIAL RESOLUTION REGISTERED AT COMPANIES HOUSE ON 27 MAY 2022 as amended on 27 Jul 2022

Charitable objects

2.1 THE OBJECTS OF THE CHARITY ARE SPECIFICALLY RESTRICTED TO THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH, IN PARTICULAR FOR CHILDREN WITH INTRACTABLE EPILEPSY, BY: A. PROVIDING FINANCIAL SUPPORT FOR THE COST OF PRESCRIPTIONS FOR MEDICAL GRADE CANNABIS PRESCRIBED BY A NAMED SPECIALIST CLINICIAN ON THE SPECIALIST REGISTER OF THE GENERAL MEDICAL COUNCIL AND THAT MEDICINAL GRADE CANNABIS HAS BEEN SO PRESCRIBED IN ACCORDANCE WITH UK GOVERNMENT LEGISLATION, REGULATIONS, AND NHS GUIDELINES, AS MAY VARY FROM TIME TO TIME, AUTHORISING SUCH A PRESCRIPTION; B. PROVIDING GRANTS OR BURSARIES TO ENABLE SUFFERERS OF THE CONDITION TO ACCESS MEDICAL CARE AND TREATMENT; A. RAISING AWARENESS OF THE CONDITION KNOWN AS INTRACTABLE EPILEPSY; B. SUPPORTING CHILDREN AND THEIR FAMILIES WHO ARE EXPERIENCING THIS CONDITION; C. DISSEMINATING INFORMATION ABOUT THE AVAILABLE TREATMENTS; D. PROVIDING OR ASSISTING IN THE PROVISION OF SUPPORT AND INFORMATION SERVICES; E. SUCH OTHER SUITABLE MEANS AS THE TRUSTEES IN THEIR DISCRETION SEE FIT SUCH AS WHICH FUNDING MEDICAL RESEARCH INTO EPILEPSY WHERE THE RESULTS OF THAT WILL BE DISSEMINATED FOR PUBLIC BENEFIT.

Contact information

Address:
Fir Tree Barn
Preston Road
Crossmoor
PRESTON
PR4 3XB
Phone:
07399114937
Email:
Info@Intractable.org.uk
Website:

https://intractable.org.uk/ Open in new window