PCD RESEARCH
Charity Number: 1197528
Charity reporting is up to date (on time)
Charity overview
Activities - how the charity spends its money
To advance the health of children and adults with Primary Ciliary Dyskinesia (PCD) by supporting research into A) Understanding PCD B) Novel therapeutic targets and therapies for PCD C) Advocating for improved standard of care for people with PCD
Income and expenditure
Data for financial year ending 01 January 2024
Total income: £40,802
Total expenditure: £11,691
People
6 Trustee(s)
Employees with total benefits over £60,000
No information availableFundraising
No information available
Trading
This charity does not have any trading subsidiaries.
Trustee payments
No trustees receive any remuneration, payments or benefits from the charity.
What, who, how, where
Main way of carrying out purposes is grant making
What the charity does:
- The Advancement Of Health Or Saving Of Lives
Who the charity helps:
- Children/young People
- Elderly/old People
- People With Disabilities
- Other Defined Groups
- The General Public/mankind
How the charity helps:
- Makes Grants To Individuals
- Makes Grants To Organisations
- Provides Advocacy/advice/information
- Sponsors Or Undertakes Research
Where the charity operates:
- Throughout England And Wales
- Australia
- Denmark
- France
- Germany
- Greece
- Israel
- Italy
- Japan
- Norway
- Portugal
- Spain
- Switzerland
- United States
Governance
Registration history:
- 17 January 2022: CIO registration
Organisation type:
CIO
Other names:
No other names
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
- Complaints policy and procedures
- Conflicting interests
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Investing charity funds policy and procedures
- Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property
Trustees
Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service
6 Trustee(s)
| Name | Role | Date of appointment | Other trusteeships | Reporting status of other trusteeships | ||||
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| Dr Harriet Holme | Chair | 01 January 2022 |
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| Florence Barkats | Trustee | 04 November 2024 |
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| Monica Dawes | Trustee | 24 November 2023 |
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| Michelle Levene | Trustee | 24 April 2023 |
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| Dr Gurhan Erturan | Trustee | 01 January 2022 |
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| Natalie Gehl | Trustee | 01 January 2022 |
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Financial history
Financial period end date
| Income / Expenditure | 01/01/2023 | 01/01/2024 | ||
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Total gross income | £153.78k | £40.80k | |
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Total expenditure | £2.47k | £11.69k | |
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Income from government contracts | N/A | N/A | |
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Income from government grants | N/A | N/A |
Accounts and annual returns
This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
| Title | Reporting year | Date received | Received | Download |
|---|---|---|---|---|
| Annual return | 01 January 2024 | 03 September 2024 | On Time | |
| Accounts and TAR | 01 January 2024 | 03 September 2024 | On Time | Download Open in new window |
| Annual return | 01 January 2023 | 10 October 2023 | On Time | |
| Accounts and TAR | 01 January 2023 | 10 October 2023 | On Time | Download Open in new window |