PCD RESEARCH

Charity number: 1197528
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

To advance the health of children and adults with Primary Ciliary Dyskinesia (PCD) by supporting research into A) Understanding PCD B) Novel therapeutic targets and therapies for PCD C) Advocating for improved standard of care for people with PCD

Income and expenditure

Data for financial year ending 01 January 2025

Total income: £238,634
Total expenditure: £19,254

People

5 Trustee(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • Other Defined Groups
  • The General Public/mankind
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales
  • Australia
  • Denmark
  • France
  • Germany
  • Greece
  • Israel
  • Italy
  • Japan
  • Norway
  • Portugal
  • Spain
  • Switzerland
  • United States

Governance

Registration history:
  • 17 January 2022: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Campaigns and political activity policy and procedures
  • Complaints policy and procedures
  • Conflicting interests
  • Engaging external speakers at charity events policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Safeguarding policy and procedures
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

5 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Dr Harriet Holme Chair 01 January 2022
None on record
Florence Barkats Trustee 04 November 2024
None on record
Monica Dawes Trustee 24 November 2023
None on record
Dr Gurhan Erturan Trustee 01 January 2022
None on record
Natalie Gehl Trustee 01 January 2022
None on record

Financial history

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Financial period end date

Income / Expenditure 01/01/2023 01/01/2024 01/01/2025
Total gross income £153.78k £40.80k £238.63k
Total expenditure £2.47k £11.69k £19.25k
Income from government contracts N/A N/A N/A
Income from government grants N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 01 January 2025 23 October 2025 On time
Accounts and TAR 01 January 2025 23 October 2025 On time Download Open in new window
Annual return 01 January 2024 03 September 2024 On time
Accounts and TAR 01 January 2024 03 September 2024 On time Download Open in new window
Annual return 01 January 2023 10 October 2023 On time
Accounts and TAR 01 January 2023 10 October 2023 On time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION REGISTERED 17 JAN 2022 AMENDED ON 24 JUN 2024

Charitable objects

THE OBJECT OF THE CIO IS TO ADVANCE THE HEALTH OF CHILDREN AND ADULTS WITH PRIMARY CILIARY DYSKINESIA (PCD), INVOLVING INHERITED MOTILE OR NON-MOTILE CILIARY DYSFUNCTION. THE CIO WILL CARRY OUT THIS OBJECT FOR THE PUBLIC BENEFIT BY VARIOUS MEANS, INCLUDING: • FUNDING AND SUPPORTING PURE SCIENTIFIC AND APPLIED/TRANSLATIONAL RESEARCH TO UNDERSTAND INHERITED CILIARY DYSFUNCTION; • ADVOCATING FOR AN EFFECTIVE CARE REGIME AND THERAPIES FOR PCD; • PROVIDING PATIENT VOICE TO ENSURE THAT RESEARCH AND THERAPEUTICS REFLECT LIVED EXPERIENCES OF PEOPLE WITH PCD; AND • RAISING AWARENESS ABOUT INHERITED CILIOPATHIES. NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005 AND SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008

Contact information

Address:
31A Berrymede Road
LONDON
W4 5JE
Phone:
07920572992
Email:
info@pcdresearch.org
Website:

www.PCDresearch.org Open in new window