MARFAN TRUST
Charity overview
Activities - how the charity spends its money
Marfan Trust raises funds to support medical research so that more is know about Marfan syndrome and its management. The results of our internationally recognised research enables doctors and surgeons to provide better treatment for patients in the short and long term. Our helpline and website www.marfantrust.org provide information. An annual supporter information day is held in October.
Income and expenditure
Data for financial year ending 31 December 2023
Total income:
£631,283
| Donations and legacies | £19.53k | |
| Charitable activities | £0 | |
| Other trading activities | £0 | |
| Investments | £2.36k | |
| Other | £609.39k |
Total expenditure:
£31,059
| Raising funds | £208 | |
| Charitable activities | £30.85k | |
| Other | £0 |
£0 investments gains (losses)
Charitable expenditure
Charitable expenditure with investment gains
Charitable expenditure
Some charities generate all, or a substantial part, of their income from investments which may have been donated to the charity as endowment or set aside by the charity from its own resources in the past. Such investments usually take the form of stocks and shares but may include other assets, such as property, that are capable of generating income and/or capital growth.
In managing their spending and investments charities need to strike a balance between the needs of future and current beneficiaries. They also need to take account of spending commitments that may stretch over a number of future years. To do this, charities will normally adopt an investment strategy designed to generate both income and capital growth. To maximise returns trustees may commit to investment strategies for several years.
Investments can experience large swings in value so trustees may, in a particular year, decide to realise and spend part of their charity’s capital or to invest part of its income.
By clicking the investment gains checkbox the charitable spending bar is adjusted to take account of capital growth as well as income. This shows the balance the charity is striking, between spending on current beneficiaries and retaining resources for future beneficiaries.
| Raising funds and other expenditure | £208 | |
| Charitable expenditure | £30.85k | |
| Retained for future use | £600.22k |
People
3 Employee(s)
8 Trustee(s)
28 Volunteer(s)
Employees with total benefits over £60,000
No employees have total benefits over £60k for this charityFundraising
Trading
Trustee payments
What, who, how, where
- Education/training
- The Advancement Of Health Or Saving Of Lives
- Disability
- Children/young People
- Elderly/old People
- People With Disabilities
- The General Public/mankind
- Provides Services
- Provides Advocacy/advice/information
- Sponsors Or Undertakes Research
- Acts As An Umbrella Or Resource Body
- Other Charitable Activities
- Throughout England And Wales
- Ireland
- Scotland
Governance
- 05 May 2022: CIO registration
- 14 March 2024: Funds received from 328070 THE MARFAN TRUST
No other names
- Complaints policy and procedures
- Conflicting interests
- Engaging external speakers at charity events policy and procedures
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Investing charity funds policy and procedures
- Investment
- Paying staff
- Safeguarding policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
Trustees
Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service
8 Trustee(s)
| Name | Role | Date of appointment | Other trusteeships | Reporting status of other trusteeships | ||||
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| Dr Anne Child | Chair | 12 December 2021 |
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| Mohamed Essam Gamil Abdelrazek | Trustee | 07 December 2021 |
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| Edward Stilliard | Trustee | 07 December 2021 |
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| Helen Syms | Trustee | 07 December 2021 |
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| Andrew Scadding | Trustee | 07 December 2021 |
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| Eleanor Hyde | Trustee | 07 December 2021 |
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| Dr Nitha Naqvi | Trustee | 07 December 2021 |
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| Robin Randall | Trustee | 05 August 2018 |
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Financial history
Financial period end date
| Income / Expenditure | 31/12/2022 | 31/12/2023 | ||
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Total gross income | £0 | £631.28k | |
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Total expenditure | £0 | £31.06k | |
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Income from government contracts | N/A | N/A | |
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Income from government grants | N/A | N/A | |
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Income - Donations and legacies | N/A | £19.53k | |
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Income - Other trading activities | N/A | £0 | |
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Income - Charitable activities | N/A | £0 | |
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Income - Endowments | N/A | £0 | |
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Income - Investment | N/A | £2.36k | |
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Income - Other | N/A | £609.39k | |
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Income - Legacies | N/A | £0 | |
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Expenditure - Charitable activities | N/A | £30.85k | |
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Expenditure - Raising funds | N/A | £208 | |
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Expenditure - Governance | N/A | £3.23k | |
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Expenditure - Grants institution | N/A | £0 | |
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Expenditure - Investment management | N/A | £0 | |
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Expenditure - Other | N/A | £0 |
Assets and liabilities
Definitions for assets and liabilities
These are assets, other than investments, which are held for more than 12 months and used to run and administer the charity such as buildings, offices, exhibits and fixtures and fittings.
Long term InvestmentsInvestments are assets held by the charity with the sole aim of generating income which will be used for their charitable purposes such as deposit accounts, shares, rental property and unit trusts.
Investment assets are re-valued every year and included in the balance sheet at their current market value.
Long term investments are held for more than 12 months.
These are assets held generally for less than 12 months such as cash and bank balances, debtors, investments to be sold within the coming year and trading stock.
Defined benefit pension scheme asset or liabilityThis is a surplus or deficit in any defined benefit pension scheme operated and represents a potential long-term asset or liability.
Total liabilitiesThese are all the amounts owed by the charity at the balance sheet date to third parties such as bills due but not yet paid, bank overdrafts and loans and mortgages.
| Asset / Liability | 31/12/2022 | 31/12/2023 | ||
|---|---|---|---|---|
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Own use assets | N/A | £5.44k | |
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Long-term investments | N/A | £6.75k | |
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Other assets | N/A | £622.43k | |
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Defined benefit pension scheme asset or liability | N/A | £0 | |
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Total liabilities | N/A | £34.40k |
Accounts and annual returns
| Title | Reporting year | Date received | Received | Download |
|---|---|---|---|---|
| Annual return | 31 December 2023 | 31 October 2024 | On Time | |
| Accounts and TAR | 31 December 2023 | 31 October 2024 | On Time | Download Open in new window |
| Annual return | 31 December 2022 | 01 February 2024 | 93 days late | |
| Accounts and TAR | 31 December 2022 | 01 February 2024 | 93 days late | Download Open in new window |