THE MIKAERE FOUNDATION

Charity number: 1200720
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

The Mikaere Foundation: - Funds research into Nonketotic Hyperglycinemia (NKH) to advance the knowledge of effective treatments - Provides support and information about Nonketotic Hyperglycinemia (NKH) to children living with NKH, their families and supporting medical professionals. - Champion initiatives related to NKH, that benefit children with NKH and their families

Income and expenditure

Data for financial year ending 31 December 2024

Total income: £61,553
Total expenditure: £43,972

People

7 Trustee(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

Main way of carrying out purposes is grant making
What the charity does:
  • Disability
Who the charity helps:
  • Children/young People
  • People With Disabilities
  • Other Defined Groups
How the charity helps:
  • Makes Grants To Individuals
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England

Governance

Registration history:
  • 18 October 2022: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Trustee conflicts of interest policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

7 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Melanie Gedye Chair 18 October 2022
None on record
Tony Collins Trustee 18 October 2022
None on record
Kirsty Lester Trustee 18 October 2022
None on record
Andrew Hulance Trustee 18 October 2022
None on record
James Irving Trustee 18 October 2022
None on record
Sam Hulance Trustee 18 October 2022
None on record
Wendy Hulance Trustee 18 October 2022
None on record

Financial history

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Financial period end date

Income / Expenditure 01/09/2023 31/12/2024
Total gross income £23.36k £61.55k
Total expenditure £21.17k £43.97k
Income from government contracts N/A N/A
Income from government grants N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 December 2024 13 May 2025 On Time
Accounts and TAR 31 December 2024 13 May 2025 On Time Download Open in new window
Annual return 01 September 2023 27 June 2024 On Time
Accounts and TAR 01 September 2023 27 June 2024 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 18 Oct 2022

Charitable objects

THE OBJECTS ARE: THE RELIEF OF PEOPLE LIVING WITH NONKETOTIC HYPERGLYCINEMIA/GLYCINE ENCEPHALOPATHY, IN PARTICULAR, BUT NOT EXCLUSIVELY BY THE PROVISION OF SUPPORT, ADVICE, GRANTS AND INFORMATION FOR SUCH PERSONS, THEIR FAMILIES, CARERS AND/OR THOSE WORKING WITH AFFECTED INDIVIDUALS.

Contact information

Address:
90 York Rd
London
SW11 3GT
Phone:
07770389476
Email:
hello@mikaerefoundation.org
Website:

http://mikaerefoundation.org/ Open in new window