Details of the type of governing document the charity has and when it was established. It is not the full text of the charity's governing document.
TRUST DEED DATED 16 JAN 2023
AS AMENDED BY DEED DATED 19 JAN 2023
Charitable objects
1) FOR THE PUBLIC BENEFIT, TO RELIEVE THE NEED OF INDIVIDUALS AND THEIR FAMILIES AFFECTED BY ANGELMAN SYNDROME AND SIMILAR CONDITIONS BY THE PROVISION OF FINANCIAL SUPPORT FOR MOBILITY AIDS, THERAPY SESSIONS, AND OTHER ESSENTIAL SERVICES DESIGNED TO ASSIST THOSE LIVING WITH THIS CONDITION.
2) THE ADVANCEMENT OF HEALTH, IN PARTICULAR BUT NOT EXCLUSIVELY, BY THE FUNDING OF RESEARCH INTO TREATMENTS AND CURES OF ANGELMAN SYNDROME AND RELATED CONDITIONS.
3) TO PROMOTE FOR THE BENEFIT OF INDIVIDUALS LIVING WITH ANGELMAN SYNDROME OR SIMILAR CONDITIONS THE PROVISION OF FACILITIES FOR RECREATION OR OTHER LEISURE TIME OCCUPATION OF INDIVIDUALS WHO HAVE NEED OF SUCH FACILITIES BY REASON OF THEIR YOUTH, AGE, INFIRMITY OR DISABLEMENT, FINANCIAL HARDSHIP OR SOCIAL AND ECONOMIC CIRCUMSTANCES AND WITH THE OBJECT OF IMPROVING THE CONDITION OF LIFE OF THE SAID INHABITANTS. EXAMPLES MIGHT INCLUDE:
TAILORED FAMILY SPORTS DAYS, OPERATED AT A LOCAL LEVEL, THAT CATER FOR ALL THE CHILDREN AND FAMILIES LIVING WITH ANGELMAN SYNDROME OR SIMILAR CONDITIONS AND;
GRANT FUNDING SPECIALIST COACHING DAYS TO ALLOW SCHOOLS TO INCLUDE CHILDREN WITH ANGELMAN OR SIMILAR CONDITIONS IN THEIR SPORTING ACTIVITIES.
