THE UK MASTOCYTOSIS SUPPORT GROUP

Charity number: 1201970
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

To support Mast Cell Disease patients so they can better understand their disease; to be the patients voice as advocates with all key stakeholders and to be lead proponents and supporters of world class research into all forms of Mast Cell Disease; delivered through a world-class charity.

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £3,746
Total expenditure: £9,828

People

4 Trustee(s)

10 Volunteer(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • Disability
Who the charity helps:
  • Children/young People
  • Elderly/old People
  • People With Disabilities
  • Other Charities Or Voluntary Bodies
  • Other Defined Groups
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 16 February 2023: CIO registration
  • 30 January 2024: Funds received from 1154007 THE UK MASTOCYTOSIS SUPPORT GROUP
Organisation type:
CIO
Other names:
  • UK MASTO (Working name)
Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

4 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Jessica Seeldrayers Hobart Chair
None on record
Lewis Williams Trustee 29 January 2025
None on record
Rebecca Williams Trustee 17 June 2024
None on record
Charlotte Carole Lane Trustee 16 February 2023
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2024
Total gross income £3.75k
Total expenditure £9.83k
Income from government contracts N/A
Income from government grants N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 31 January 2025 On time
Accounts and TAR 31 March 2024 31 January 2025 On time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 16 Feb 2023

Charitable objects

THE PRESERVATION AND PROTECTION OF HEALTH AND THE RELIEF OF NEED IN PARTICULAR BY: 1. PROVIDING ADVICE, SUPPORT AND INFORMATION TO IMPROVE QUALITY OF LIFE FOR MAST CELL DISEASE PATIENTS AND THEIR CARERS; 2. PROVIDING OR ASSISTING IN THE PROVISION OF INFORMATION TO THE PUBLIC ABOUT MAST CELL DISEASES; 3. SUPPORTING MEDICAL PROFESSIONALS IN THEIR UNDERSTANDING OF MAST CELL DISEASES, THEIR DIAGNOSIS, PROGNOSIS AND TREATMENT; AND 4. SUPPORTING RESEARCH INTO MAST CELL DISEASES, THEIR CAUSES AND THE MEANS TO IMPROVE THE HEALTH AND QUALITY OF LIFE OUTCOMES FOR THOSE SUFFERING WITH THE CONDITION AND PROMOTING THE DISSEMINATION OF THE USEFUL RESULTS OF SUCH RESEARCH.

Contact information

Address:
86-90 Paul Street
London
EC2A 4NE
Phone:
02039742722
Email:
info@ukmasto.org
Website:

www.ukmasto.org Open in new window