EI CURE PROJECT UK

Charity number: 1205112
Recently registered

Charity overview

This charity has been recently registered - it does not need to update its information until 10 months after its first financial period ends

Activities - how the charity spends its money

Epidermolytic Ichthyosis (EI) is a painful genetic skin disease where the skin blisters with minimal trauma, but also grows excessively fast limiting mobility and resulting in frequent skin infections. There is no cure, and most people who are affected spend 2-4 hours caring for their skin and wounds every single day. The EI Cure Project UK is a non-profit organisation which includes patient a

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Other Defined Groups
How the charity helps:
  • Makes Grants To Organisations
  • Provides Advocacy/advice/information
Where the charity operates:
  • Throughout England
  • Austria
  • Qatar

Governance

Registration history:
  • 09 October 2023: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
No policies declared
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

4 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Andrew Sanders Chair 26 April 2023
None on record
Hannah Lark Trustee 11 July 2023
None on record
Rhiannon Sian Morgan Trustee 11 July 2023
None on record
CATHERINE LANCASHIRE Trustee 26 April 2023
None on record

Financial history

This charity was registered recently. It does not have to provide information until 10 months after its first financial period.

Accounts and annual returns

This is a newly registered charity - accounts and annual return not required yet. The charity does not need to update its information until 10 months after its first financial period ends.

Governing document

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 09 Oct 2023

Charitable objects

THE OBJECTS OF THE CIO ARE: THE RELIEF OF SICKNESS AND THE PROMOTION OF GOOD HEALTH FOR THE PUBLIC BENEFIT BY FUNDING AND SUPPORTING RESEARCH INTO THE CAUSES AND TREATMENT OF EPIDERMOLYTIC ICHTHYOSIS (“EI”) AND PUBLISHING AND DISSEMINATING THE USEFUL RESULTS THEREOF; AND THE RELIEF OF SUFFERERS OF EI AND THEIR FAMILIES AND CARERS BY THE PROVISION OF GRANTS TO CHARITIES OR OTHER ORGANISATIONS THAT SUPPORT INDIVIDUALS AFFECTED BY EI.

Contact information

Address:
12 Manor Fields
Alrewas
BURTON-ON-TRENT
DE13 7DA
Phone:
07921723235
Email:
eicureproject@gmail.com
Website:

www.eicureproject.com Open in new window