JOANNA RUTH BELL FOUNDATION
Charity overview
Activities - how the charity spends its money
JRBF focuses on helping people with Neurofibromatosis (NF) with a specific focus on Neurofibromatosis type 1 (NF1) in two main ways: 1) Advancing medical research and 2) providing support and assistance for projects and activities that directly aid and provide relief to individuals.
What, who, how, where
- The Advancement Of Health Or Saving Of Lives
- Makes Grants To Organisations
- Sponsors Or Undertakes Research
- Throughout England And Wales
- United States
Governance
- 14 February 2024: Standard registration
No other names
Trustees
Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service
4 Trustee(s)
Name | Role | Date of appointment | Other trusteeships | Reporting status of other trusteeships | ||||
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Joel Richard Bell | Chair |
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Dr Leslie Anne Duncan | Trustee | 22 September 2024 |
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Ethan Gottlieb Kuhn | Trustee |
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Dr Stewart Wynn Humble | Trustee |
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Financial history
Accounts and annual returns
Governing document
Governing document
It is not the full text of the charity's governing document.
MEMORANDUM AND ARTICLES INCORPORATED 03 NOV 2023
Charitable objects
THE OBJECTS OF THE CIO ARE, FOR THE PUBLIC BENEFIT, THE RELIEF OF SICKNESS AND THE PRESERVATION OF HEALTH AMONG PEOPLE SUFFERING FROM NEUROFIBROMATOSIS (NF) AND NF-RELATED DISEASES THROUGH: 4.1 THE PROVISION OF FUNDING TO ADVANCE MEDICAL RESEARCH INTO, AND THERAPEUTICS AND TREATMENTS FOR, NF AND NF-RELATED DISEASES (IN PARTICULAR NEUROFIBROMATOSIS TYPE 1); AND 4.2 THE PROVISION OF ASSISTANCE AND SUPPORT FOR SUCH CHARITABLE PROJECTS, SERVICES, AND ACTIVITIES WHICH PROVIDE RELIEF TO PEOPLE SUFFERING FROM NF AND NF-RELATED DISEASES.
Contact information
- Address:
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Mardale
Manor Road
Wantage
OX12 8DW
- Phone:
- 07549764943
- Email:
- info@jrbfNF1.org
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