Details of the type of governing document the charity has and when it was established. It is not the full text of the charity's governing document.
TRUST DEED DATED 11 JUL 2022
AS AMENDED BY DEED DATED 09 SEP 2023
Charitable objects
1. THE RELIEF OF SICKNESS AND THE PRESERVATION OF HEALTH FOR PEOPLE WITH ALEXANDER DISEASE AND OTHER LEUKODYSTROPHIES INCLUDING WITHOUT LIMITATION BY:
A. THE PROVISION OF FINANCIAL ASSISTANCE TO PATIENTS, THEIR FAMILIES AND CARERS; AND
B. THE PROMOTION OF RESEARCH INTO THE NATURE, CAUSES, DIAGNOSIS, PREVENTION, TREATMENT AND CURE OF ALEXANDER DISEASE AND OTHER LEUKODYSTROPHIES AND THE DISSEMINATION OF SUCH RESEARCH FOR THE PUBLIC BENEFIT.
