DESMOID AID UK

Charity number: 1207309
Recently registered

Charity overview

This charity has been recently registered - it does not need to update its information until 10 months after its first financial period ends

Activities - how the charity spends its money

Desmoid Aid UK is a non-profit charity providing information for patients and their families when they have been diagnosed with Desmoid-type fibromatosis. The charity provides links to information and resources about the disease. We also provide a small grant to help pay for unexpected costs for newly diagnosed patients undergoing treatment.

What, who, how, where

What the charity does:
  • General Charitable Purposes
Who the charity helps:
  • The General Public/mankind
How the charity helps:
  • Makes Grants To Individuals
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 05 March 2024: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
No information available
Other regulators:
No information available
Policies:
No policies declared
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

5 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Jacqui Black Chair 23 February 2024
None on record
Julie Langley Trustee 01 May 2024
None on record
Anna Worthington Trustee 21 February 2024
None on record
Sam Hackett Trustee 18 February 2024
None on record
Rosemary Sloman Trustee 16 February 2024
None on record

Financial history

This charity was registered recently. It does not have to provide information until 10 months after its first financial period.

Accounts and annual returns

This is a newly registered charity - accounts and annual return not required yet. The charity does not need to update its information until 10 months after its first financial period ends.

Governing document

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 05 Mar 2024

Charitable objects

TO RELIEVE CHARITABLE NEEDS OF PEOPLE DIAGNOSED WITH DESMOID-TYPE FIBROMATOSIS (ALSO KNOWN AS AGGRESSIVE FIBROMATOSIS AND DESMOID TUMOURS) AND THOSE WHO CARE FOR THEM FOR THE PUBLIC BENEFIT BY THE PROVISION OF: A. FINANCIAL GRANTS TO PEOPLE DIAGNOSED WITH DESMOID-TYPE FIBROMATOSIS; B. EDUCATION AND INFORMATION TO RAISE PUBLIC AWARENESS AND PROMOTE THE EFFECTIVE CARE OF PEOPLE AFFECTED BY DESMOID TUMOURS; C. ANY OTHER ADDITIONAL SUPPORT TO PEOPLE AFFECTED BY DESMOID TUMOURS AND RELATED CONDITIONS AS TRUSTEES SEE FIT. THERE IS NO GEOGRAPHICAL LIMITS WITHIN ENGLAND AND WALES.

Contact information

Address:
16
OCKENDEN ROAD
LITTLEHAMPTON
16
OCKENDEN ROAD
BN17 7FH
Phone:
07974005676
Email:
info@desmoidaiduk.com
Website:

www.desmoidaiduk.com Open in new window