GRI-UK

Charity Number: 1207930
Recently registered

Charity overview

This charity has been recently registered - it does not need to update its information until 10 months after its first financial period ends

Activities - how the charity spends its money

GRI-UK works to drive research into treatments and cures for GRI Disorders (GRIA, GRID, GRIK, & GRIN); Support families so that those diagnosed can lead the best life possible; Raise awareness of GRI disorders within UK heath systems to enable better diagnosis/treatment; and Bring together a range of partners to make the UK a centre of excellence for finding treatments and cures to GRI conditions.

Income and expenditure

Data for financial year ending 31 March 2025

Total income: £37,965
Total expenditure: £640

People

7 Trustee(s)

Employees with total benefits over £60,000

No information available

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • People With Disabilities
How the charity helps:
  • Makes Grants To Organisations
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 19 April 2024: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
No information available
Other regulators:
No information available
Policies:
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Investing charity funds policy and procedures
  • Social media policy and procedures
  • Trustee expenses policy and procedures
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

7 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Alyson Koopman Chair 19 April 2024
ST WHITE'S PRIMARY SCHOOL PTA
Charity reporting is overdue by 359 days
Colette Miriam Dufficy Trustee 12 March 2025
None on record
Susan Patricia Banks Trustee 19 April 2024
None on record
Toni Lee Clarke Trustee 19 April 2024
None on record
Kristina Margaret McKean Trustee 19 April 2024
None on record
Shilpa Kaluti Trustee 19 April 2024
None on record
Jillian Lorna Hastings Ward MAHons MSc Trustee 19 April 2024
None on record

Financial history

This is a recently registered charity and the chart shows the financial history since registration
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Financial period end date

Income / Expenditure 31/03/2025
Total gross income £37.97k
Total expenditure £640
Income from government contracts N/A
Income from government grants N/A

Accounts and annual returns

This is a newly registered charity - accounts and annual return not required yet. The charity does not need to update its information until 10 months after its first financial period ends.

Governing document

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 19 Apr 2024

Charitable objects

THE CIO’S OBJECT IS TO PRESERVE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT IN PARTICULAR BUT NOT EXCLUSIVELY OF PEOPLE WITH GRIA, GRID, GRIK, & GRIN GENE DISORDERS BY:- AIMING TO ADVANCE CURES AND TREATMENTS; SUPPORTING FAMILIES SO THAT THOSE DIAGNOSED WITH THESE DISORDERS CAN LEAD THE BEST LIFE POSSIBLE; RAISING AWARENESS, INCLUDING WITHIN THE UK HEALTH SERVICE, AND MEDICAL CENTRES OF THE SYMPTOMS, NEEDS AND MEDICAL CONDITIONS OF THOSE LIVING WITH GRI DISORDERS TO HELP ENABLE BETTER AND FASTER ACCESS TO DIAGNOSIS AND TREATMENTS; MAKING THE UK A CENTRE OF EXCELLENCE FOR THE PUBLIC BENEFIT OF FINDING TREATMENTS AND CURES FOR GRI DISORDERS; AND BY FOCUSING ON BRINGING TOGETHER PATIENTS, PARENTS, FAMILY MEMBERS, MEDICAL PROFESSIONALS, RESEARCHERS, SCIENTISTS, PHARMACEUTICAL, BIOSCIENCE AND ACADEMIC COMMUNITIES.

Contact information

Address:
Durham House
10 Pony Chase
COBHAM
Surrey
KT11 2PF
Phone:
07973252208
Email:
ALYSON.KOOPMAN@GRI-UK.ORG
Website:

www.gri-uk.org Open in new window