Register of Charities - The Charity Commission CDKL5 UK

Charity number: 1207922
Recently registered
This charity has been recently registered - it does not need to update its information until 10 months after its first financial period ends

Activities - how the charity spends its money

To preserve and protect the health of individuals diagnosed with and affected by CDKL5 in particular by, providing assistance and advocacy in the form of support groups for the patient community. Providing up to date and relevant information to individuals and their representatives diagnosed with the condition.


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