Governing document CDKL5 UK
Charity number: 1207922
Recently registered
Governing document
Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.
It is not the full text of the charity's governing document.
CIO - FOUNDATION Registered 18 Apr 2024
Charitable objects
THE OBJECTS OF THE CIO ARE TO PRESERVE AND PROTECT THE HEALTH OF INDIVIDUALS DIAGNOSED WITH AND AFFECTED BY CDKL5 IN PARTICULAR BY: A PROVIDING ASSISTANCE AND ADVOCACY IN THE FORM OF SUPPORT GROUPS FOR THE PATIENT COMMUNITY. B PROVIDING UP TO DATE AND RELEVANT INFORMATION TO INDIVIDUALS AND THEIR REPRESENTATIVE DIAGNOSED WITH THE CONDITION AND TO MEDICAL PROFESSIONALS AS A MEANS OF IMPROVING UNDERSTANDING AND RAISING AWARENESS OF CDKL5 C PROMOTING AND SUPPORT RESEARCH IN CDKL5