CRELD1 WARRIORS

Charity number: 1209106
Recently registered

Charity overview

This charity has been recently registered - it does not need to update its information until 10 months after its first financial period ends

Activities - how the charity spends its money

To provide support for families caring for a child with CRELD1, to raise awareness of this very rare disease and to support medical research.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • People With Disabilities
  • The General Public/mankind
How the charity helps:
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 12 July 2024: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
No policies declared
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

6 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Jessica Clatworthy Chair 12 July 2024
THE SANDCASTLE TRUST
Received: On time
Kate Edwards Trustee 12 July 2024
None on record
WILLIAM MARCUS CHRISTOPHER CAMPBELL Trustee 12 July 2024
None on record
Adam Neal Clatworthy Trustee 12 July 2024
None on record
Samantha Lusty Trustee 12 July 2024
None on record
Emma Jayne Court Trustee 12 July 2024
None on record

Financial history

This charity was registered recently. It does not have to provide information until 10 months after its first financial period.

Accounts and annual returns

This is a newly registered charity - accounts and annual return not required yet. The charity does not need to update its information until 10 months after its first financial period ends.

Governing document

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 12 Jul 2024

Charitable objects

TO RELIEVE THE NEEDS OF CHILDREN WITH CRELD1 GENE SEQUENCE VARIATION AND RELATED DISORDERS AND THEIR FAMILIES THROUGH: A) PROVIDING SUPPORT FOR FAMILIES CARING FOR A CHILD WITH THIS CONDITION; B) INCREASING THE UNDERSTANDING OF THE PUBLIC ON THIS SUBJECT; C) MAKING GRANTS TO SUPPORT RESEARCH FOR SUCH PURPOSES; D) SUCH WAYS AS THE TRUSTEES MAY DETERMINE. IN THESE OBJECTS ‘CRELD1’ (CYSTEINE RICH WITH EGF LIKE DOMAINS 1) IS A PROTEIN CODING GENE. SEQUENCE CHANGES IN THE CRELD1 GENE ARE TYPICALLY ASSOCIATED WITH THE CAUSE OF ATRIOVENTRICULAR SEPTAL DEFECT (AVSD).

Contact information

Address:
159 READING ROAD SOUTH
CHURCH CROOKHAM
FLEET
GU52 6AQ
Phone:
07508542562
Email:
CRELD1@outlook.com
Website:

CRELD1.com