THE NOAH JORDAN FOUNDATION

Charity number: 1208933
Recently registered

Charity overview

This charity has been recently registered - it does not need to update its information until 10 months after its first financial period ends

Activities - how the charity spends its money

We fund research with the aim of improving clinical management, developing treatments, and finding a cure for rare, terminal paediatric mitochondrial diseases, such as Alpers-Huttenlocher Syndrome. We raise awareness among the public and healthcare professionals through events and training and support affected families with information, services, resources, and financial aid.

What, who, how, where

What the charity does:
  • General Charitable Purposes
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
  • Disability
Who the charity helps:
  • Children/young People
  • Other Charities Or Voluntary Bodies
  • The General Public/mankind
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England

Governance

Registration history:
  • 02 July 2024: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
No information available
Other regulators:
No information available
Policies:
No policies declared
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

6 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Ben Jordan BArch PGCE MA Chair
None on record
Rosemary Kenyon BA MBA Trustee 08 April 2025
None on record
Simon Stiggear BA (Hons) ACA Trustee
None on record
Natasha Bailey BA (Hons) Trustee
None on record
Rachael McDonald BA (Hons) PGCE Trustee
None on record
Daniel Macken BA (Hons) Trustee
None on record

Financial history

This charity was registered recently. It does not have to provide information until 10 months after its first financial period.

Accounts and annual returns

This is a newly registered charity - accounts and annual return not required yet. The charity does not need to update its information until 10 months after its first financial period ends.

Governing document

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 02 Jul 2024

Charitable objects

THE OBJECT OF THE CIO IS: FOR THE PUBLIC BENEFIT TO RELIEVE SICKNESS AND PRESERVE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF LIFE LIMITING PAEDIATRIC MITOCHONDRIAL DISEASE, IN PARTICULAR BUT NOT EXCLUSIVELY POLG RELATED MITOCHONDRIAL DISORDERS INCLUDING ALPERS HUTTENLOCHER SYNDROME, AND THEIR FAMILIES AND CARERS BY ALL OR ANY OF THE FOLLOWING MEANS: (1) THE PROVISION OF GRANTS TO PROMOTE MEDICAL RESEARCH INTO PAEDIATRIC MITOCHONDRIAL DISEASE, THE USEFUL RESULTS OF WHICH WILL BE PUBLISHED, WITH THE AIM OF FINDING A CURE AND MEDICATION TO ASSIST IN TREATMENT AND MANAGEMENT OF THE CONDITION; (2) RAISING AWARENESS ABOUT ALL AND ANY ISSUES RELATED TO PAEDIATRIC MITOCHONDRIAL DISEASE AMONG THE PUBLIC AND HEALTHCARE PROFESSIONALS; (3) PROVIDING FAMILIES LIVING WITH PAEDIATRIC MITOCHONDRIAL DISEASE WITH SERVICES, ITEMS, INFORMATION AND SUPPORT, INCLUDING FINANCIAL SUPPORT WHERE POSSIBLE.

Contact information

Address:
THE NOAH JORDAN FOUNDATION
Unit A
82 JAMES CARTER ROAD
MILDENHALL
SUFFOLK
IP28 7DE
Phone:
07301424540
Email:
contact@thenoahjordanfoundation.org.uk
Website:

www.tnjf.org.uk Open in new window