HOPE FOR HERMIONE

Charity Number: 1210847
Recently registered

Charity overview

This charity has been recently registered - it does not need to update its information until 10 months after its first financial period ends

Activities - how the charity spends its money

Hope for Hermione's Primary purposes are; - For the advancement of education to raise awareness of Beta Propeller Accumulation Neurodegeneration (BPAN). - For the advancement of health and saving lives by raising funds to support research to find a cure for BPAN. - To provide support and services to individuals, families, caregivers and friends of those affected by BPAN.

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • People With Disabilities
  • Other Charities Or Voluntary Bodies
  • The General Public/mankind
How the charity helps:
  • Makes Grants To Individuals
  • Makes Grants To Organisations
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 07 November 2024: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
Not recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Campaigns and political activity policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Engaging external speakers at charity events policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Risk management
  • Safeguarding policy and procedures
  • Safeguarding vulnerable beneficiaries
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

4 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Kathleen Paton Chair 14 August 2024
None on record
Courtney Bolton Trustee 28 November 2024
None on record
Andrew Paton Trustee 15 September 2024
None on record
Caryn de Nocker Trustee 15 September 2024
None on record

Financial history

This charity was registered recently. It does not have to provide information until 10 months after its first financial period.

Accounts and annual returns

This is a newly registered charity - accounts and annual return not required yet. The charity does not need to update its information until 10 months after its first financial period ends.

Governing document

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - FOUNDATION Registered 07 Nov 2024

Charitable objects

TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF THOSE DIAGNOSED WITH BETA-PROPELLER PROTEIN-ASSOCIATED NEURODEGENERATION (BPAN) AND THEIR FAMILIES AND CARERS BY: - GRANT FUNDING EXTERNAL ORGANISATIONS TO UNDERTAKE RESEARCH INTO ALL AREAS OF BPAN; - PROVIDING OR ASSISTING IN THE PROVISION OF EQUIPMENT, FACILITIES AND SERVICES NOT NORMALLY PROVIDED BY THE STATUTORY AUTHORITIES; - PROVIDING SUPPORT, EDUCATION AND PRACTICAL ADVICE ON LIVING WITH AND MANAGING BPAN; AND - EDUCATING AND RAISING AWARENESS OF BPAN AMONGST THE WIDER PUBLIC.

Contact information

Address:
6 GORHAM DRIVE
DOWNSWOOD
MAIDSTONE
ME15 8UU
Phone:
+447974796672
Email:
info@hopeforhermione.com
Website:

www.hopeforhermione.com Open in new window