THE PAGET'S DISEASE OF BONE ASSOCIATION

Charity number: 1213575
Recently registered

Charity overview

This charity has been recently registered - it does not need to update its information until 10 months after its first financial period ends

Activities - how the charity spends its money

The Paget's Association is the only UK charity dedicated to supporting individuals affected by Paget's disease of bone. It offers information and support to patients, carers, and health professionals, funds research, and raises awareness about the condition

What, who, how, where

What the charity does:
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Elderly/old People
  • People With Disabilities
  • Other Charities Or Voluntary Bodies
  • The General Public/mankind
How the charity helps:
  • Makes Grants To Organisations
  • Provides Services
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
Where the charity operates:
  • Throughout England And Wales

Governance

Registration history:
  • 09 June 2025: CIO registration
Organisation type:
CIO
Other names:

No other names

Gift aid:
No information available
Other regulators:
No information available
Policies:
  • Bullying and harassment policy and procedures
  • Campaigns and political activity policy and procedures
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Engaging external speakers at charity events policy and procedures
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Internal risk management policy and procedures
  • Investing charity funds policy and procedures
  • Investment
  • Risk management
  • Safeguarding policy and procedures
  • Serious incident reporting policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

11 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Professor Stuart Hamilton Ralston Chair 09 June 2025
THE NATIONAL ASSOCIATION FOR THE RELIEF OF PAGET'S DISEASE
Received: On time
PREGNANCY ASSOCIATED OSTEOPOROSIS UK
Recently registered
Mohamed El Erian Trustee 09 June 2025
None on record
Professor Robert Graham Goodwin Russell Trustee 09 June 2025
THE NATIONAL ASSOCIATION FOR THE RELIEF OF PAGET'S DISEASE
Received: On time
Robert Layfield Trustee 09 June 2025
THE NATIONAL ASSOCIATION FOR THE RELIEF OF PAGET'S DISEASE
Received: On time
Dr Sheelagh Farrow Trustee 09 June 2025
THE NATIONAL ASSOCIATION FOR THE RELIEF OF PAGET'S DISEASE
Received: On time
Amanda Sherwood Trustee 09 June 2025
THE NATIONAL ASSOCIATION FOR THE RELIEF OF PAGET'S DISEASE
Received: On time
Kely Burman Trustee 09 June 2025
THE NATIONAL ASSOCIATION FOR THE RELIEF OF PAGET'S DISEASE
Received: On time
Professor Jeremy Mark Wilkinson Trustee 09 June 2025
THE NATIONAL ASSOCIATION FOR THE RELIEF OF PAGET'S DISEASE
Received: On time
Eve Marcia Berry Trustee 09 June 2025
THE NATIONAL ASSOCIATION FOR THE RELIEF OF PAGET'S DISEASE
Received: On time
Dr Faizanur Rahman Trustee 09 June 2025
THE NATIONAL ASSOCIATION FOR THE RELIEF OF PAGET'S DISEASE
Received: On time
Alan Martin Trustee 09 June 2025
THE NATIONAL ASSOCIATION FOR THE RELIEF OF PAGET'S DISEASE
Received: On time

Financial history

This charity was registered recently. It does not have to provide information until 10 months after its first financial period.

Accounts and annual returns

This is a newly registered charity - accounts and annual return not required yet. The charity does not need to update its information until 10 months after its first financial period ends.

Governing document

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CIO - ASSOCIATION Registered 09 Jun 2025

Charitable objects

TO PRESERVE AND PROTECT THE HEALTH OF PERSONS SUFFERING FROM PAGET'S DISEASE OF BONE AND THEIR FAMILIES BY: A) PROVIDING INFORMATION AND SUPPORT, B) RAISING AWARENESS ABOUT PAGET'S DISEASE OF BONE BOTH WITHIN THE MEDICAL AND ALLIED HEALTH PROFESSIONS, AND AMONGST THE GENERAL PUBLIC, C) SUPPORTING AND FUNDING RESEARCH PROJECTS IN THE FIELD OF PAGET'S DISEASE OF BONE OR ITS TREATMENT, (D) WORKING AND COORDINATING WITH OTHER ORGANISATIONS (CHARITABLE, VOLUNTARY, GOVERNMENTAL OR OTHERWISE) TO SUPPORT THOSE AFFECTED BY RARE BONE DISORDERS; AND (E) UNDERTAKING ANY OTHER ACTIONS AND/OR OBJECTS IN SUPPORT OF PERSONS SUFFERING FROM PAGET'S DISEASE OR MAY BE AT RISK OF SUFFERING FROM PAGET'S DISEASE, THEIR FAMILIES AND CARERS.

Contact information

Address:
THE PAGETS ASSOCIATION
JACTIN HOUSE
24 HOOD STREET
MANCHESTER
M4 6WX
Phone:
01617994646
Email:
helpline@paget.org.uk
Website:

https://paget.org.uk/ Open in new window