THE BRITISH PORPHYRIA ASSOCIATION

Charity Number: 1089609
Charity reporting is up to date (on time)

Charity overview

Activities - how the charity spends its money

Support for people with porphryia and their relatives. Improve understanding of porphryia. Support research into porphryia.

Income and expenditure

Data for financial year ending 31 March 2024

Total income: £38,654
Total expenditure: £44,162

People

9 Trustee(s)

15 Volunteer(s)

Employees with total benefits over £60,000

No employees have total benefits over £60k for this charity

Fundraising

No information available

Trading

This charity does not have any trading subsidiaries.

Trustee payments

No trustees receive any remuneration, payments or benefits from the charity.

What, who, how, where

What the charity does:
  • Education/training
  • The Advancement Of Health Or Saving Of Lives
Who the charity helps:
  • Other Defined Groups
How the charity helps:
  • Makes Grants To Individuals
  • Provides Advocacy/advice/information
  • Sponsors Or Undertakes Research
  • Acts As An Umbrella Or Resource Body
Where the charity operates:
  • Throughout England And Wales
  • Northern Ireland
  • Scotland

Governance

Registration history:
  • 30 November 2001: Standard registration
  • 17 February 2017: Funds received from 328647 THE PORPHYRIA CHARITABLE TRUST
Organisation type:
Other
Other names:

No other names

Gift aid:
Recognised by HMRC for gift aid
Other regulators:
No information available
Policies:
  • Complaints handling
  • Complaints policy and procedures
  • Conflicting interests
  • Financial reserves policy and procedures
  • Internal charity financial controls policy and procedures
  • Paying staff
  • Safeguarding policy and procedures
  • Social media policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Trustee expenses policy and procedures
  • Volunteer management
Land and property:
This charity does not own and/or lease land or property

Trustees

Trustees are the people responsible for controlling the work, management and administration of the charity on behalf of its beneficiaries. Generally trustees are treasurer, chair, board member etc. The trustees are responsible for keeping this list up to date and can do this by updating their details as they happen through the online service

9 Trustee(s)

Name Role Date of appointment Other trusteeships Reporting status of other trusteeships
Dr Victoria Anne McGuire Chair 03 October 2023
None on record
Claire Jarvis Trustee 19 March 2024
None on record
Victoria Harrold Trustee 03 October 2023
None on record
Natassja Chadwick Trustee 19 September 2020
None on record
Richard Bennett Trustee 19 April 2018
None on record
ANNE NEWTON Trustee 30 November 2001
None on record
KAREN ELIZABETH HARRIS Trustee 30 November 2001
BOURTON VILLAGE HALL
Received: On time
JOHN WALTER CHAMBERLAYNE MA Trustee
DURHAM CITY METHODISTS
Received: On time
ALAN MOLYNEUX Trustee
None on record

Financial history

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Financial period end date

Income / Expenditure 31/03/2020 31/03/2021 31/03/2022 31/03/2023 31/03/2024
Total gross income £55.97k £25.65k £23.06k £43.55k £38.65k
Total expenditure £54.89k £22.60k £23.11k £48.13k £44.16k
Income from government contracts N/A N/A N/A N/A N/A
Income from government grants N/A N/A N/A N/A N/A

Accounts and annual returns

This table shows the charity's record of submitting annual returns, accounts and trustees' annual report (TAR) for the last five financial periods.
Title Reporting year Date received Received Download
Annual return 31 March 2024 15 November 2024 On Time
Accounts and TAR 31 March 2024 15 November 2024 On Time Download Open in new window
Annual return 31 March 2023 01 November 2023 On Time
Accounts and TAR 31 March 2023 01 November 2023 On Time Download Open in new window
Annual return 31 March 2022 04 December 2022 On Time
Accounts and TAR 31 March 2022 Not Required
Annual return 31 March 2021 02 October 2021 On Time
Accounts and TAR 31 March 2021 02 October 2021 On Time Download Open in new window
Annual return 31 March 2020 16 September 2020 On Time
Accounts and TAR 31 March 2020 16 September 2020 On Time Download Open in new window
Submit annual return Open in new window

Governing document

Details of the type of governing document the charity has and when it was established.
It is not the full text of the charity's governing document.

CONSTITUTION ADOPTED ON 24 JUNE, 2001. as amended on 30 Sept 2024

Charitable objects

THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY PORPHYRIA AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TO: (A)THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO PORPHYRIA AND ITS IMPLICATIONS FOR THE FAMILY; (B)THE PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF PORPHYRIA AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.

Area of benefit

The area the charity can operate in, as set out in its governing document.

NOT DEFINED

Contact information

Address:
136 DEVONSHIRE ROAD
DURHAM
DH1 2BL
Phone:
0300 30 200 30
Email:
helpline@porphyria.org.uk
Website:

www.porphyria.org.uk Open in new window